NeuroTalk Support Groups - What Is A Good Day For You?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - What Is A Good Day For You? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/22686-day.html)

I cal them an 'ok day' & 'a not so ok day" . An ok day is when I don't have to take any break thru pain meds. I had one of those this week, on Wednesday. It was almost a shock to me when I realized it on Thursday. *LOL* My doc wants me to cut back on BTP meds this summer. Cause summer is usually when I have lots of 'ok days'/'good days'. So far this summer it hasn't been that great. It has been a cooler spring, altho they are saying this year is more normal couldn't prove it by me. I moved here to N CA in the fall of '99 & every spring has been HOT until this spring. I have been having a difficult time keeping my feet/ankles in a comfortable temperature range. They are mostly cold when I am sweating everywhere else like a race horse.

I need to go take a either a shower or a nap *LOL*

DebbyV

I can't seem to quite get through a whole day with no trouble but on a good day there will be no major pain flares and my mood will be good. I'll have a lot of energy and get several hours of light work done.

I always have to do what the hand says but some days it just wants to pitch in and do something. It rarely balks because of it I think, but like with everything connected to this, I just don't know.

This is the best day I've had in months and I got six or seven hours of really good but mostly sedentary work accomplished. It feels good because I was born to work.

Ah...I guess I'm "normal" after all though I was kind of wishing there might some day be the potential for pain free days. Oh well. At least it's nice to know we're all in the same boat. Thanks for your reassurance. Jeannie

Quote:

Originally Posted by frogga (Post 117749)

Hey Jeannie,

I guess a more real set of words would be "normal" days and "horrendous" days - but to make it sound positive it's better to go for good days and bad days and is so much more socially acceptable (friends always ask if it's a good day, never a normal day!!!!)

I guess for me a "good" day has me sitting up for most of it, being able to go out of the house, spend time outside even though I am shattered and my pain is horrible, whereas a bad day I feel like I've been smacked round the head with a saucepan, got a hangover, can barely think from pain and fatigue and other RSD symptoms appear far worse, on days like these even sitting up for 10 minutes can drain me for the rest of the day pain wise and I would find it hard to impossible to go out and do things.

I hope this is some help! I wish good days were pain free - but they are just a day when you can do more and the pain is not destroying your life as much, but never gone.

Love

Frogga xxxxxxxxx

I pretty much ditto this! :( :I-Agree: :Crazy 2: :Noooo:

Love ya Sweet Heart! :hug: :hug: :heartthrob:

Good versus Bad,
Good day: I do not cry for no reason, I can breathe through the pain which is 24/7, I can spend time with my flowers perhaps take a few photos, I can brush my cat, kiss my husband and......, hug my son, take a short walk, perhaps type for 20 mins on this site, call friends and make dinner (even though it takes me twice as long as before RSD but I do have fancy gadgets that help)

Bad day: I cry for no reason, my arms spasm & burn and I can't stop shaking them for about 1/2 an hour at a time, I am short-tempered, I sleep until noon, I sleep only 2 hours at night, I drop everything I pick up, I swear, I can't eat and I refuse to answer the phone.

That is a very short list as I am sure with everyone. We just have to remember, the our "GOOD" moments should be tucked away so that we can relive them when the "BAD" gets too much to handle.