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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-05-2015, 02:28 PM | #1 | |||
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Hello Everyone,
I am finally off of my feet after being on them for about the last 3 hours, trying to get to my Pain Management Doctor's Appointment and find a Pharmacy that had my Pain Management Meds. Been a long day already. I recently was told that my CRPS has moved into the areas of my brain that are responsible for controlling my Linguistic and Communicative Functions. My brain is often Blank, when communicating, my words are slurred, and I stutter and stammer. It has been really difficult communicating. As a result, I don't say too much publicly. I also took an American Sign Language Course years ago, when I had 3 Deaf People in one of the churches that I was the pastor at, so, I've begun to relearn the language. I have someone learning along with me, which really helps. If any of you struggle to communicate because of CRPS / RSD, ASL really is a great way to communicate. At least it has been a real God send for me. If you'd like information about books or apps for your tablet, iPad, iPhone, or smartphone, please let me know. There is some very good stuff out there. Here's to your having a pain free day. Have a great day.
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~ No Pain is Gain ~ -Spike- |
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10-05-2015, 02:49 PM | #2 | ||
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I hope your appointment went well and that you get the rest you deserve.
I too use asl....wait I take that back....mostly finger spell. I have taken courses and have a close friend, whom I don't see that often so text, who is deaf. For some reason I can't get past full sentences....I tend to try and sign every word I am speaking. I don't know why my brain won't look at this as another language not as English. I am bilingual so I understand the backwards of sentence structure. |
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"Thanks for this!" says: | PurpleFoot721 (10-05-2015), St George 2013 (10-05-2015) |
10-05-2015, 02:51 PM | #3 | |||
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Quote:
What helped me was when I realized that ASL is like painting a picture. That really helped. Yet, I must admit. I pick up languages pretty easily... Greek, Hebrew, English, ASL. And not necessarily in that order. GRIN
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~ No Pain is Gain ~ -Spike- |
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"Thanks for this!" says: | St George 2013 (10-05-2015) |
10-05-2015, 03:01 PM | #4 | ||
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[QUOTE=-Spike-;1175732)
What helped me was when I realized that ASL is like painting a picture. That really helped.[/QUOTE] Sorry about you're pain level.....I am on my meds and it's not working Happy to hear that you can pick up language well. Tied Hebrew.... Nope. And I have been interested in asl for over, well I won't say how long:D And Ican't/haven't been able to get it yet! I went on field trips...have been one on one and I ll be darned if my brain wont bend.....but I will not give in....... |
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"Thanks for this!" says: | St George 2013 (10-05-2015) |
10-05-2015, 03:06 PM | #5 | |||
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Quote:
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~ No Pain is Gain ~ -Spike- |
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"Thanks for this!" says: | PurpleFoot721 (10-05-2015), St George 2013 (10-05-2015) |
10-05-2015, 03:18 PM | #6 | ||
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I am not an app person...there is a teacher I follow online sometimes. My first book I was told by my deaf friend wasn't helpful....so I ran out to Barnes and Nobel got me a picture book. And I find myself referring to my old one.....but I need to learn for health reasons.
Anywho....it's close to smoothie time....am surprised no one thought it was an earthquake.... NT people it's just my tummy..... |
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"Thanks for this!" says: | PurpleFoot721 (10-05-2015), St George 2013 (10-05-2015) |
10-06-2015, 11:09 AM | #7 | ||
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10-06-2015, 11:11 AM | #8 | |||
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Just letting you know you're not alone. I too have trouble communicating. My troubles are also due too my shrinking cerebellum. The atrophy is in the inner side by my nerve stem and also affecting motor skills and speech. Like you I too learned ASL and it does come in handy because I also talk a lot less in public. I read your post and had to chime in...
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