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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-12-2015, 04:05 PM | #11 | ||
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Thank you for the responses!
I just checked a Calcium and Vitamin D and have finally brought both of those up to where they should be. They had been kind of low. I do break a lot of bones since the RSD started. I also dislocate or tear tendons a lot due to the hypermobile part of it. (My original RSD Doc says hypermobility caused my RSD). I guess I never put these things together in my head to blame it on the RSD but I too find it difficult to say where it stops and something else starts. There was one very good RSD Doc here when I was first diagnosed - he was neuro/pain. Everyone else now seems to think I'm some hypochondriac so I'm afraid to ever bring anything up. When I do I'm dismissed immediately and they treat me like I'm loony. I don't even visit the Doctor for broken bones anymore. They seem to think I'm a nut but I don't even complain about the pain very much. I don't seek meds - in fact, I never take them and say thank you, but no thanks. I don't know what else to do. Maybe being hooked up with a decent Doctor would solve a lot of my problems?
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Age 32 - RSD/CRPS Dx 11/2006 with Severe Small Nerve Fiber Neuropathy and various recurrent issues and autoimmune disease. |
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10-12-2015, 07:37 PM | #12 | ||
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