Originally Posted by Littlepaw

Hi Jenna,

I am sorry to hear of your worsening pain. Getting someone on board who believes you and wants to help you is imperative. If you can get to Cleveland Clinic it might be worth it. Dr. Michael Stanton-Hicks is there. He is a highly respected CRPS specialist and researcher. Their pain department will be familiar with CRPS, with spread, with all manner of presentations.

Frankly, I would not waste any more time with a practitioner who isn't believing what you tell them. I don't know how you could possibly be cared for properly under those conditions. What if they do injections for you and you have complications? What will they believe then?

Your age is irrelevant, but it is often helpful to go to appointments with support. If you have a parent or other older relative in town, take them with you. You won't feel so alone and doctor behavior may alter slightly.

If you can't get to CC soon, then call around and find other docs who treat this and can get you in. The less time you have such pain intensity the better. You may have to doctor shop a bit. Sad but true. I landed with the 3rd pain specialist because I just wasn't impressed or comfortable with the first two. Your confidence in your doc is important.

Please let us know what happens. I am praying you find help and relief soon.
Sending hugs and healing love,