NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Anyone else? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/227385-else.html)

Try watching hypnotherapy (pain) and meditation YouTube videos. You can listen to most of them.

I used to be a voracious reader, but due to pain I lost my ability to concentrate, now I watch TV .I found that documentaries, foreign films, even ones I am enjoying knock me out.

Jenna,
If you feel you have no support system it sounds like a good pain management theapist might be a good place to start. I started going in June and it helps. It's a pain to go, especially with all the other appointments we have, but it's worth it. If finances are a problem most communities offer free counseling services or services on a sliding scale. You sound very overwhelmed and are dealing with many different issues. Might be worth a try. ~mac

Bio,
I have binge watched so many series on Netflix. It is a way of escape and coping for me. Not much of a TV watcher before, but I don't know what I would have done without it. ~mac

Quote:

Originally Posted by Jennareimer (Post 1177635)

I was curious if anyone else experienced this.

So I'll be in like horrible horrible pain once I lay down and get ready for bed and get extreme painsomnia. And then like aound the times (depending how bad the pain gets) 5-9am I will finally fall asleep and sleep for about 2-4 hours and wake up in terrible pain again. I'm basically living off naps at this point. Is this just me or does anyone else have this happen?

My pain skyrockets at night too. Starts in my back then down both legs. Im ok for awhile on my side then my hips start. Then its my neck etc etc. A while of this then my body is on fire from my waist down. I have been on sleeping meds for years because i am in so much pain i cant sleep much at all during the night. I havent had a night of normal sleep since 2009 when this all began. So if nothing else, know that others struggle with this problem too.