Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-31-2015, 11:36 PM #1
megsmountain megsmountain is offline
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Join Date: Oct 2015
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megsmountain megsmountain is offline
Junior Member
 
Join Date: Oct 2015
Location: The foothills
Posts: 40
8 yr Member
Default staying healthy

Quote:
Originally Posted by -Spike- View Post
If someone would have told me that I would be dealing with a disabling disease, when I was benching 360 lbs, had a 52" chest, and a 32" waist and had to have all of my clothes tailor made, because I couldn't pull off the rack pants over my legs, I would have told them that they were crazy. Well, here I am with a debilitating disease, and my keeping myself in top physical shape did little to halt the aggressive nature of CRPS.

The disease combined with the drugs really made keeping fit and in proper control of weight gain very difficult. In fact one of my drugs, Lyrica is known for rapidly putting the pounds on a person. And because of my disease, gone are the days of making a quick trip to the gym to make sure that I get my work out in. So, I am curious. What are some of you doing to monitor and keep an eye on what CRPS does to our bodies?

As for me, it took me a long time to find a good healthy diet that didn't contribute to the painful plight of having CRPS. What are you doing to keep a healthy balance and do you have any hints of how to remain healthy and still enjoy food, while having CRPS! This disease has dealt a hand, where the cards are definitely stacked against us.
Hi Spike. I have been dealing with CRPS for over a decade, I have learned a tremendous amount of coping skills in this time. I "did" the whole Lyrica thing as well and determined it wasn't worth the side effects--major weight gain, blurry vision, not being able to function, I could go on and on. Lyrica only helped as well with a small portion of my pain. To stay healthym I absolutely have to exercise, outside!, daily with my doggie if possible. That helps tremendously to create natural endorphins (and the sunlight helps). Also, I take a lot of supplements that help; magnesium, multi vitamin, b complex, fish oil, ester-c, coq10, all very helpful. Eating a ton of veggies (mostly) and avoiding processed and packaged foods helps a lot. It's very hard for me as I have RSD in my hands, but I do my best and it pays off exponentially. Also, maintaining healthy relationships and ridding yourself of the negative ones is very helpful as you can decrease your stress levels. Take care.
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