I just had the Weirdest pain yet. I had burning CRPS pain around the tissue surrounding my eyeballs, in the area of the eye socket. That was combined with the blinking of my eyes really really fast and for a moment, I could't even open my eyes at all without forcing them open. Luckily for me, I'd been having a really bad pain day, so I passed out from the whole body pain that I had been experiencing. The pain around my eye was weird in that it was like I could feel the soft tissue surrounding my eye as this was happening. The best way to describe it is: It felt like my eye balls were buried in the swamp. My goodness; can this disease get any weirder? Any one else experience that?

Have not experienced it, but it sounds terrible. Hope that was a once and done occurrence. ~mac

Hopefully it is a one time occurrence for you, but this is an almost daily thing for me. I have severe pain in my eye sockets, then my eyes feel like I'm blinking really fast and rolling back at the same time. It began in my left eye, and now it is in my right too. Sometimes my vision "shuts down" like an old TV, how it just fades out. Then pretty quickly comes back. Currently my eyes are my biggest problem. I've talked with my Dr about it a lot. That kind of eye pain is for the birds. Sorry you are experiencing it.

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I know that CRPS can effect the eye and I don't know what it actually can do when it does, but this almost sounds a bit more like MS. Have you by chance ever been tested for that? I don't mean to scare you but it may be something to discuss with your doctor. I do know that CRPS and MS can both present similar symptoms so I can only say it as a suggestion.

Actually the very first time this happened they thought it was a stroke. Then for a very long time MS was on the table. I have had many MRI's over the years looking for lesions on my brain and or spine. There were never any. MS is possible without lesions but very rare. When I walked into my newest Neurologist/PM Dr appt I told him about the problem with my eyes. Side note he was trained for nine years by world renowned RSD Doctor, Dr. Schwartzman. Anyway he told me before even looking at my chart he could tell CRPS/RSD had spread into my eyes because of the swelling, color, and temperature. Then reading my report seeing optic nerve damage. He said certain things can cause a flare in my eyes, mainly lights, too much visual stimulus, and outside temperature specifically too hot. He suggested that I wear two very dark pairs of sunglasses at the same time. At night two sleeping masks. I don't do well with a dark room with the contrast of a bright computer or TV screen either. I appreciate your comments, and am always very open to opinions, concerns, and information. Thanks. I really love this great group of concerned friends. Big fat hugs.

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