Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-29-2015, 07:40 AM #1
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Default Opinions on SCS Or pain pump

My doctor is giving me a choice of either the spinal cord sitimulator or a pain pump. Any one have any advice on both and experiences with them?
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Old 10-29-2015, 11:42 AM #2
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Honestly, I think your too young to have to go with either. If I remember correctly, you said you are 18. You are still young and have a great chance of putting this back into remission. I don't know how badly the CRPS is affecting your life, but unless you have expended all other options I would stay away from both. This is just my opinion. I was offered to go with the SCS but went to another doctor to search for more options before going with it. I would ask to see what other options are available for you at your state of dealing with CRPS.
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Old 10-29-2015, 12:24 PM #3
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Default Pain Pump

Quote:
Originally Posted by Jennareimer View Post
My doctor is giving me a choice of either the spinal cord sitimulator or a pain pump. Any one have any advice on both and experiences with them?
I was diagnosed with CRPS Type II from an injury resulting from an auto accident in 2003. I was a passenger in a roll over accident that left me with a compound fracture, dislocation, and severe nerve damage, as well as diagnosed with RSD, now known as CRPS Type II (w/nerve injury). I was being treated at Cleveland Clinic, and my doctor at the time chose to go with the pain pump. He said the spinal cord stimulator would disfigure me at a young age, so we opted for the pump. It was for a 6-week period, which felt more like 6 mos
It was a struggle let me tell you, but I actually went into remission; however, that only lasted a few years. It was so worth it though...to have a few good years without the excruciating pain. I have been on pain medication and ongoing physical therapy, but my condition has not improved. I would recommend trying the pain pump first. You may get the relief you hope for, even if it only lasts a few years...
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Old 11-02-2015, 02:10 AM #4
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I am most likely going with the pump. Nothing else is working. I may be 18, but my CRPS is not going into remission . its been over a year and half since this flare up started. And it just keeps getting worse every day. I have full body and internal CRPS. I have been stuck in the hospital for about a week now because I can't not move anymore. I'm hoping something helps....I want my life back.....
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