Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-27-2015, 03:33 PM #1
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PurpleFoot721 PurpleFoot721 is offline
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Join Date: Sep 2015
Location: Near Oscoda Michigan
Posts: 469
8 yr Member
Default Errrrr

Hi All,

Well, it has been a month of being on the low dose of methadone and a month since my last visit to see my PM. Over the past week, I saw both my PCP and my PM and now I am extremely upset, but it comes with a bit of a funny story to start off with.

A few weeks ago, I received a call from my PCP reminding me that both my husband and I still needed to have our annual physical before the end of the year. We decided to wet up our appointments together for last Thursday. Well, a week ago, I received another call from their office again reminding me that I still need to have my pap smear as well, but if I wanted they could do it there. I figured that instead of making a separate appointment and having to go across town to have yet another appointment with yet another doctor that I would have to explain things to, I would have it done there along with my physical, all in one day. Then another call came in saying that they won't have time to do a physical on both my husband and I and do a pap at the same time, so they canceled me having a physical done until next month.

On Thursday, we went to our appointments and they took us to our exam room. The nurse looked into the charts and there was quite a mix up. I was listed as being scheduled and approved for a physical, and my husband was scheduled and approved for a pap smear. She had no idea what to do since these were pre-approved by our insurance, so she left that for our doctor to decide what was to be done about not only the office error, but also the insurance approval error. Needless to say, I had a physical, and my husband had a flu shot, tetanus shot and trigger point injection for an issue with his arm and shoulder.

Then the bad news came. I found out that Thursday was the last day for our PCP in that office. He was going to leave being a general practitioner and go back to being an anesthesiologist. The doctor that owns the practice was to take over our medical care from that point on, since he is the only other doctor in that office. I have never liked this doctor. He has made more than one mistake with me and I do not need a doctor that constantly makes mistakes with my healthcare. He is a great business man, but a horrible doctor. He does have a PA that works for him that is rather good and if he ever finishes med school, I would gladly be one of his patients. As a PA, he rarely treats me.

Yesterday, I had my appointment with my PM. My first appointment with him was wonderful. This appointment was with a PA that knows absolutely nothing about CRPS and only follows a treatment plan that deals with generalized pain that was set up by the pain management doctor. I found out that he only visits with new patients and those that are extreme cases once a week. I figured that I would try her out and went through the appointment. I told her how this past month was while on the low dose of methadone. She didn't like what I had to say, so she told me to stop to try something else. No tapering off, just stop. It was a low dose so no tapering should be necessary. I asked a few basic questions, questions about the possibility of using some sort of topical, maybe even clonidine. I was told that none of them are effective for severe pain and clonidine is only used for treating withdrawal symptoms, not nerve pain. I asked about possibly a compounded ketamine cream. Her response was that ketamine can not be compounded into a cream that would be effective, it is an iv anesthetic only. She wrote me a prescription for fentanyl and said this will work if you want some sort of topical that works. It's the only transdermal prescription that she would write. She refilled my gabapentin and amitriptyline wrote a script for fentanyl and percocet and sent me on my way. all prescriptions were post dated for next week, 11/2 so that I could finish with my prescription of methadone before having these filled. I was not happy with yesterday's appointment.

I want to ask, should I be concerned about withdrawal symptoms of the methadone? I was told to take them as directed until they are gone and then start with the fentanyl and percocets. I have a weeks worth left. Should I try to start tapering off over the next couple of weeks even though I was told to just stop?

I have had two disappointing appointments in the past week, one with my PCP who is leaving General Practice and the other with what I thought was going to be a continuing appointment with my PM who turned out to be a PA that knows nothing about CRPS. I feel like I need to start searching for a new doctor for both primary care and pain management.

Thanks for listening to my long rant of the what has been going on over the last couple of days.
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Alaina
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