Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-31-2015, 04:17 PM #1
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Default RFA of knee, anyone had one?

Hello, I'm kinda new here. I haven't logged in since 2012 until earlier today. I've enjoyed lurking over the years, but as my RSD has progressed and spread to my left leg and knee after knee surgery in 2014, I'm ready to jump in to help support others, and hopefully find support too.

My RSD spread 48 hours post op, and my pain doc retired shortly after leaving me no one to help. I finally got a new pain mgt dr 5 months later and he's been a huge resource for me! I didn't get my first lumbar block until 6 mo post op. I've had 3 since and they have me great leg coverage, but no knee coverage. I had a diagnostic genicular block in June on my knee and it was successful in covering the nerve pain. I'm scheduled Nov 2rd for my RFA (nerve ablation), and I'm wondering if anyone else has had one? I'd love to hear from others and their experiences. Thanks in advance.
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Old 10-31-2015, 04:38 PM #2
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Smile Welcome!

Hi Redraidermommy,

I have not had a nerve ablation.

I just want to say hi and welcome!

Warmly,
DejaVu
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Old 11-02-2015, 06:55 PM #3
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Hi and Welcome back!

I hope you had a successful procedure and get good pain relief. Let us know how it went. I don't know how many of us have tried a peripheral nerve RFA or might even be a candidate for one (my nerve that is troublesome is too near motor branches). We will all want to know how this works out for you. Hopefully stellar!

Sending hugs and healing love,
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Old 11-03-2015, 07:28 PM #4
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Hi and Welcome back!

I hope you had a successful procedure and get good pain relief. Let us know how it went. I don't know how many of us have tried a peripheral nerve RFA or might even be a candidate for one (my nerve that is troublesome is too near motor branches). We will all want to know how this works out for you. Hopefully stellar!

Sending hugs and healing love,
Thank you for your reply. I just got home an hour ago from the procedure (I posted the wrong date!), and my knee joint is very, very tender to touch and it hurts to bend my leg more than 20 degrees. My dr said it was successful and once the initial tenderness/joint pain subsides I should be able to feel actual relief. What I can tell you at this moment, is that I feel ZERO nerve pain and burning like I did before I went under. I will report back in a few more days once I have a better idea of the results, and some of the soft tissue swelling subsides! Thank you for the support! I've been very nervous about this procedure since I you tubed it and watched it (I was mortified!), but luckily my dr uses MAC sedation with a lil extra propofol so I don't feel it, and I get a nice nap. :-) This is my knee after I got home. The coloring seems to have improved too.
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Old 11-03-2015, 07:34 PM #5
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Yeah! It sounds like it went well. Good to hear you have no nerve pain. I hope it stays quiet!

As we know, ice is no good with CRPS but I find gel packs kept in the fridge instead of the freezer to be nice for swelling. And of course lots of elevation.

It might not be a bad idea to hit 500 mg of Vit C daily for a month like you would for a regular surgery.

Sending thoughts for quick recovery,
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Old 11-03-2015, 07:56 PM #6
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Originally Posted by Littlepaw View Post
Yeah! It sounds like it went well. Good to hear you have no nerve pain. I hope it stays quiet!

As we know, ice is no good with CRPS but I find gel packs kept in the fridge instead of the freezer to be nice for swelling. And of course lots of elevation.

It might not be a bad idea to hit 500 mg of Vit C daily for a month like you would for a regular surgery.

Sending thoughts for quick recovery,
Thank you little paw! I have a hard time with standing anything cool against my skin as my allodynia is a little out of control and anything that touches my skin pretty much causes pain! I did restart the vitamin C about two days ago so hopefully as I continue that it'll help long-term!
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Old 11-03-2015, 07:30 PM #7
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Hi Redraidermommy,

I have not had a nerve ablation.

I just want to say hi and welcome!

Warmly,
DejaVu
Thank you, and hello! Thanks for the warm welcome. :-)
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Old 01-01-2016, 02:05 PM #8
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Smile Hi

I joined because I could hardly find anybody who was posting anything on genicular neurotomy or aka rf ablation of the knee. I had it done yesterday bilaterally due to osteoarthritis that has failed to be controlled by arthroscopic surgery and prescription medications. It's been a hell of a year for me starting with the failed surgery in 12/2014 on my knees. I am for sure not very experienced in message boards so I apologize if I am in the wrong one.
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Old 01-01-2016, 08:50 PM #9
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I joined because I could hardly find anybody who was posting anything on genicular neurotomy or aka rf ablation of the knee. I had it done yesterday bilaterally due to osteoarthritis that has failed to be controlled by arthroscopic surgery and prescription medications. It's been a hell of a year for me starting with the failed surgery in 12/2014 on my knees. I am for sure not very experienced in message boards so I apologize if I am in the wrong one.
Hi, I hope you get relief and heal quickly from your procedure. I can't think of a good place to direct you for RFA info. Medications and Treatments maybe? I know one member had ablation and posted there.

Wishing you health and peace in the New Year.
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Old 02-12-2016, 10:44 PM #10
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Quote:
Originally Posted by Littlepaw View Post
Hi, I hope you get relief and heal quickly from your procedure. I can't think of a good place to direct you for RFA info. Medications and Treatments maybe? I know one member had ablation and posted there.

Wishing you health and peace in the New Year.
I also asked my ortho and another ortho, and they goth agreed I was good candidate for it.

If you google "genicular nerve block" a lot of good information and you tube vids come up. That's how I did my research for three months before scheduling it.
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