Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-01-2015, 12:41 PM #1
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Default Hello everyone

I have decided to get the spinal cord simulator. Who here has it and any suggestions on down time from the procedure. The temp one and the permanent. Also do you like it?


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Old 11-01-2015, 01:25 PM #2
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Originally Posted by Juliek72 View Post
I have decided to get the spinal cord simulator. Who here has it and any suggestions on down time from the procedure. The temp one and the permanent. Also do you like it?


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I'm thrilled for you that you've decided to get this. I really think that if it works, you will greatly benefit with it at work. I've only had the temporary one. Took me a few days to recover after the first placement. I can't speak to the down time after the surgery to implant the permanent SCS. I wish you well. Go get 'em! Whoa!
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Old 11-01-2015, 01:35 PM #3
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Hi Julie,

I can't speak from experience here but I hope you get good relief.
I would certainly advocate doing your research on what your doc has available. There are a lot of options on how the battery is charged, whether is it wireless, higher frequency, etc. Some of those details can make a big difference in how much it helps and in how convenient it is.

There is an SCS subforum under the Medications and Treatments page where you can find a lot of info.

Let us know when you go ahead so we can send positive thoughts and healing love your way.
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Old 11-01-2015, 01:47 PM #4
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Hi Julie,

Here is the Link to the SCS Forum Littlepaw mentioned:

http://neurotalk.psychcentral.com/forum118.html

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Old 11-01-2015, 02:05 PM #5
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Hi Julie,

I do not know much about this topic firsthand. I have read the thread Littlepaw and Dave have mentioned. After reading about the experiences of many different people here, I agree with Littlepaw regarding doing a lot of research first.

I hope you are having a better day today, Julie.


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Old 11-01-2015, 04:51 PM #6
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I appreciate all of y'all input. I am doing my research. The thing is if I'm going to do this. I need to do it by 12-31-15. Because I am at my out of pocket max for the year so it will cost me nothing. Or about 5000.00 next year. I need phsych eval so I need to get things moving.


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Old 11-01-2015, 04:52 PM #7
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Quote:
Originally Posted by -Spike- View Post
I'm thrilled for you that you've decided to get this. I really think that if it works, you will greatly benefit with it at work. I've only had the temporary one. Took me a few days to recover after the first placement. I can't speak to the down time after the surgery to implant the permanent SCS. I wish you well. Go get 'em! Whoa!

Do you have it or did you do the trial and it didn't work for you?


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Old 11-01-2015, 04:59 PM #8
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Quote:
Originally Posted by Juliek72 View Post
I appreciate all of y'all input. I am doing my research. The thing is if I'm going to do this. I need to do it by 12-31-15. Because I am at my out of pocket max for the year so it will cost me nothing. Or about 5000.00 next year. I need phsych eval so I need to get things moving.


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Oh, Julie, I do understand. I am in the same position right now with insurance and deductibles. It gets mighty expensive again on Jan 1st.
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Old 11-01-2015, 08:06 PM #9
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I was doing some research but not much of it says about the recovery time after transplant. I did see some things that says 6-8 weeks is that true?


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Old 11-02-2015, 03:08 AM #10
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Quote:
Originally Posted by Juliek72 View Post
Do you have it or did you do the trial and it didn't work for you?


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I did the trial and ended up having it fail big time. Yet, let me say this, I highly recommend you give it a try. Even though my experience was extremely physically painful, I'm glad that I at least tried. Because had it worked, I truly believe my pain would have greatly decreased and I would be much more active than I am now. And this could really help you in your work situation, if successful. One other thing. Yes, give it a great deal of thought. BUT... You are correct, you do have a short time frame in order to set this up and do, for the reasons you mentioned concerning your insurance, and given the fact that you must squeeze a psych eval in the time frame between now and when the surgery must happen, which is before the end of the year. So, you'll have to get after it quick, IF YOU do indeed decide to do it. If it were me, I'd go for it! AGAIN.. I'm no medical professional. I am just speaking from my own experience.

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