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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-03-2015, 01:52 PM | #1 | |||
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Thank you Russell and AlaskanLady, I needed a laugh today. AlaskanLady could not have put it better. It's the concentration part that I have the hardest time with. I think it may be part of the whole short term memory thing, but I don't know. I can have a thought and two seconds later, I can't remember what it was and it can drive me crazy. If I am reading something, I too find that I have to read a line several times before it makes any sense to me and realize that I have just read it six times.
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. Alaina |
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"Thanks for this!" says: | DejaVu (11-08-2015) |
11-04-2015, 05:04 AM | #2 | |||
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Here are the areas of cognitive and emotional loss that I have either read about in Medical Research Articles or personally experienced thus far:
1. Planning 2. Organizing 3. Self-Awareness 4. Self-Regulation 5. Initiation of Action 6. Word Recall 7. Lexical Memory 8. Conscious Memory of Events 9. Declarative Memory 10. Attention Deficit 11. Tactile Discrimination 12. Problems with Sleep 13. Depression 14. Irritability 15. Poor Judgement 16. Concentration Problems 17. Agitation 18. Panic Attacks 19. Stuttering 20. Stammering 21. Brain Blanking Out 22. Loss of Words in Brain 23. Inability to get the Thoughts From the Brain out through the Lips (Complete Silence) 24. Repetitive Reading of Printed Words without Retaining Understanding & Meaning Although, I personally do not suffer from every one of these symptoms, it is no wonder why I suffer so terribly much of the time around the people that I am the closest to and in social settings, when prior to CRPS, I used to be such a people person! Personally, I suffer in 22 of the areas listed above. -Spike-
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~ No Pain is Gain ~ -Spike- Last edited by -Spike-; 11-04-2015 at 06:33 AM. |
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11-04-2015, 05:16 AM | #3 | |||
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Russell, PurpleFoot721 & AlaskanLady, How would you define your symptoms in just a few words, so we can add them to the list of my last post?
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~ No Pain is Gain ~ -Spike- |
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"Thanks for this!" says: | DejaVu (11-08-2015) |
11-04-2015, 09:23 AM | #4 | |||
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Well, as for me sometimes I think of something to say to my wife but by the time I wheel myself into the room that she's in I've forgot what I was going to say. Very frustrating.
Another one is that when typing I'll forget how to spell words that are easy to know. Makes me angry and feel dumb. One last thing. I'm giving my driver/ wife directions and I'll be pointing left and say right. This one drives my wife crazy... I could go on but I don't want to bore you... Be safe...
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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"Thanks for this!" says: | DejaVu (11-08-2015) |
11-04-2015, 12:36 PM | #5 | |||
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Oh ya, one more thing. I used to play the piano but now I have trouble remembering some stuff. That really makes me crazy...
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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"Thanks for this!" says: | DejaVu (11-08-2015) |
11-04-2015, 03:14 PM | #6 | |||
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What I have noticed so far:
Easily agitated Lowered comprehension Inability to put thoughts to words - although I have always had a difficulty with that Used to type 65-70 words per minute, now I find myself always looking at the keyboard, I know where the key is but my hands want to go somewhere else, I guess I would say that is procedural memory Easy discouragement I am sure I could come up with more but I am having a bit of a blank moment right now, just looking at the curser blink, which is so discouraging. Maybe they will come to me later.
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11-05-2015, 01:48 AM | #7 | |||
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Here is an updated listing Loss of Cognitive and Emotional Functions Due to CRPS 1. Planning 2. Organizing 3. Self-Awareness 4. Self-Regulation 5. Initiation of Action 6. Lexical Memory & Word Recall (Loss of Words in Brain, Forgetting how to Spell even Simple Words, Solving Cross Word Puzzles) 7. Conscious Memory of Events 8. Declarative Memory 9. Attention Deficit 10. Tactile Discrimination 11. Problems with Sleep 12. Depression 13. Irritability 14. Poor Judgement 15. Concentration Problems 16. Easily Agitated 17. Panic Attacks 18. Stuttering 19. Stammering 20. Brain Blanking Out 21. Inability to Verbally Express Thought 22. Directional Confusion (Right from Left, North from South) 23. Loss of Theme in Thought 24. Easily Discouraged 25. Lack of Comprehension 26. Loss of Cognitive Fidelity (Hindered in Musical Skills, Being Creative, Speaking Foreign Languages, Playing Chess, Detailed at Work, Typing on a Keyboard Professionally etc.) (List Provided by Patient Not a Medical Professional)
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~ No Pain is Gain ~ -Spike- Last edited by -Spike-; 11-05-2015 at 08:07 AM. |
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11-05-2015, 02:13 PM | #8 | |||
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Okay I'm gonna jump in here and cause a little trouble . I hope ya'll don't mind.
I can't argue that CRPS affects cognitive and limbic/emotional function BUT many things can contribute to cognitive symptoms we have. We are affected by medications, lack of restorative sleep, general fatigue and chronic pain in general. I don't want to think all of it is the result of changes to my nervous system. I know that I myself am sometimes fuzzy and have to think harder than in the past. My mood is affected by my pain, as is my sleep. But to be honest I was a little scatterbrained and forgetful before this. I find I am deeply enriched by still doing the things I used to, even if less effectively and also by trying new things. I am fighting CRPS brain by taking piano, something I might not have done otherwise. I've had ten lessons now and it is fun. I may have to practice more than the average person, I don't know, but it gets me off thinking about my foot pain. I also go to a once a week Italian class for 8 weeks each semester. Everyone there knows I am still getting treatments for my foot. No one minds when I blank out or miss a day. I go when I can, which is sometimes erratic. Last week I went to the play Seven Wives for Dracula with my son. Since it was at the high school, it was easy parking and seating. It was hilarious, the students did an amazing job and it was only five dollars. It is so easy to get swallowed by this disease. I am learning that throwing a line out to multiple things helps me stay afloat. Try new things, keep those hobbies, adjust things as you need to make them work! For painful days I just got some coloring books for grown-ups. We gotta keep those non-pain synapses firing! Sending gentle hugs,
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"Thanks for this!" says: | bluekrikit (11-06-2015), DejaVu (11-08-2015), megsmountain (11-07-2015), NurseKris (11-07-2015), PurpleFoot721 (11-05-2015), Russell (11-06-2015) |
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