hi ada,
i have taken that ride in the car to nowhere too, several times. it is like trying to get away from myself. unfortunately, when i get 'where ever', my problems are right with me.
your body is already in stress mode from all the pain, and add to that grieving, and the normal everyday stressors of family and life, and you get where you feel so overwhelmed.
counseling helps, and prayer for those of us who believe and relaxation techniques, others suffering help, but in the end we each, in our own way, need to find what works on a daily basis and do what we love first while we have the energy to do it. don't give up ... joan

I just wanted to thank everyone who answered this post of mine. Didn't want you to think I was ingnoring ya'll cause I wasn't. Just have online very much this summer. I wish it were for a good reason I wasn't online, but there ya have it.

I guess I should be grateful that I don't get the increased BP or heartrate like alot to most of ya'll do. I guess all we can do is hang in there & do what we all do best........keep on keeping on.

DebbyV

Hey guys,

I just saw this and wanted to pass along a book I read and a recent test that I had done. It was a saliva test for neurotransmitters from senesco via holistic doc and boy was I surpised at the results. Working with the doc to address imbalances but the cycle was fascinating to read about. Been trying some of the suggestions and today i felt much better and calmer.


http://www.adrenalfatigue.org/doi.php. Just thought I would pass along.

i like your quote about courage. gail

Funny we talk about the thing that is on my mind. Since mine is cut what happens to my fight or flight? I guess I just dont fight or flight anymore. And with it cut and if it heals than what will I start feeling worse? my pain is half at imes never less so half is better I must say untile it flares RRRRR!

I sweat on half my body now, since mine is cut or in other places more. I have dry skin, and if you think the sun bothers befor it is like 10 times worse with it cut so tender is my skin, I wish someone else who had thiers cut would talk to me.....

Hi flipnout,

After reading your post here, I'm totally confused. I tried to look back over your posts to see if you had talked about a surgical sympathectomy and couldn't find anything, but I get lost easier than I used to. so I have to ask:

Did you have one? I hope I'm not being too personal, but sympathectomies are so rare today that anything you can tell us about it would help others here. (And while I haven't posted much recently, I thought I had been pretty much keeping up with my reading, so I was amazed at the thought that a sympathectomy discussion went right past me).

Also, in reviewing some of your posts I found one in which you talked about bad luck finding a good home aide; I don't know what you've learned about resources, but where I live is so rural, I couldn't find any help at all. My grandson (and his wife) moved in to help out, for room and board, but w.c. refused to pay family members. Then they found a home of their own and moved out. He still dropped by, at least once a day, but his visits were becoming fewer. I needed help.

I eventually called the local Area Agency on Aging (AAA), and they gave me a list of home care businesses that aren't listed in the yellow pages. The first place I called didn't have anyone available for me, and asked how I had been getting along. I told the woman about my deal with my grandson and bemoaned the fact that w.c. wouldn't pay him.

She told me that she could hire him and bill work comp. I couldn't believe it, so I called w.c. and it was true. I don't know who pays for your home aide or their hiring policies, but I hope something I said can help you find another provider or (my favorite option) a way to pay a family member.

I know w.c. had dealt with this sort of agency before, but they never told me about that. I guess they don't like to spend money. BTW, I wanted to make everything clear to w.c., so I told them that I needed someone to sit around and watch TV so they could be available when I needed them.

I needed someone in the morning and evening for 2 hours each time, and w.c. paid for 4 hours a day, five days a week. Today, my daughter is my provider, and she is paid 6 hours a day, six days a week. I'm sure w.c. would force most people to fight for this, but they really screwed up in my case; fighting me for five years, until the law judge ruled I was too disabled to attend hearings. The settlement agreement the l.j. approved says that if my doc prescribes anything and they refuse to pay for it, they have to pay my lawyer to fight my case.

Sounds nice, and is, but life still sucks. I get a home aide because I need one, and I hate needing one. We all do. I hope something I said is helpful...Vic

I am so glad to hear you are getting some help nowadays.

Flipnout, I wanted to say, I have 2 caregivers, one is my daughter. She has been with me for almost 3 years. I just got my second one a couple of weeks ago.

I get 4 hours a day 6 days a week also. The way mine is paid is through the state. You might want to check with Social Services in your area. My Social Worker got my help for me. It is paid for by SSI or SS so either one will pick up the tab.

There are a lot of options out there we don't know about as Vicc says. It takes asking a lot of questions to a lot of people.

I was wondering also if you had a sympethetomy. As Vicc says you don't hear of them too often but we use to have a couple of girls on here that had them. I can't remember names but I think some just wonder off of here and don't come back when they get better and a lot of times when they get worse.

Ada

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