Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-13-2015, 01:54 AM #6
megsmountain megsmountain is offline
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Join Date: Oct 2015
Location: The foothills
Posts: 40
8 yr Member
megsmountain megsmountain is offline
Junior Member
 
Join Date: Oct 2015
Location: The foothills
Posts: 40
8 yr Member
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Quote:
Originally Posted by Lessa View Post
@Bio - I was specifically prescriped D3 just the way it is because my multivitamins come with the K2, and the cranberry has helped me SO much in the past with UTI's that I really don't get any. We use sensidyne here at home, and it has the xyl...whatever stuff in it. Both of us can be sensitive cold so hence the reason.

@Megs - I haven't really let myself grieve, as I was trying hard to 'not be that person' whatever that person is. But now I find going through the motions to be helpful. The only thing I do CRPS related is this forum now, and I try to look at the positive ones, or at least be able to help someone with a post. I've started to make a work out plan with my wife for some safe exercises to help me get back in shape, and just allowed myself to enjoy things without feeling guilty. I have found that explaining to my wife that I'm grieving has allowed her to understand my emotions and be there, being supportive is something that really has helped me! I don't look up cures, and I don't talk about my pain. One of the BIGGEST issues I've had is focusing and talking about my pain. So now I've vowed silence, as a couple of my friends pointed out that's all I talked about. Thank you =D
Lessa, I posted before. But wanted to let you know again, it is ok to talk about your CRPS issues, just don't make it all you talk about, that's when you become "that person" you described. Letting yourself grieve, at least to me and the one person I actually associate with in person with CRPS has helped us tremendously. It's like letting go of a huge burden. You may need to grieve alone, you may have help, you may need counseling help to get through this, all of those are completely normal!!! Any "normal" person would be incredibly upset by realizing that they can't do a lot of things they used to be able to do and their life is altered suddenly by this thing.... I am so glad you explained to your wife about the grieving process and she was receptive to that. It is sooooo very hard for people that don't experience all our challenges and pain daily to get or understand a tiny portion of it. Like I said in an earlier post, I don't think you have to go the complete silence route, as you need to vent. Just find the appropriate audience to do so. Like I said before, I avoided support groups, etc., like the plague before as they were very negative when I was diagnosed (2004) or maybe I just didn't find the right place. I feel there are many kind and knowledgeable people here that really just want to help. I guess that is where I am at right now. I am having a very hard setback and other (new) medical issues so I would just like a distraction now in helping others so I don't think about myself. Please don't feel sorry or anything for me, I just want to help you all. Take care and let yourself grieve your losses due to CRPS (don't focus on them), just try and let them go and focus on the good and great things you can still do!! Also, always know now, you can be of tremendous help to others that are suffering as you have been there and have the awareness to try and take care of yourself. Sorry for the long reply. I am currently trying to focus on anything but myself
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BioBased (11-13-2015), DejaVu (11-13-2015), Lessa (11-18-2015), Littlepaw (11-13-2015), PurpleFoot721 (11-13-2015)
 


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