I got back awhile ago from my sleep apnea test. She says I definately quailfy for the cpep machine but she wants me back. I didn't go into what they called REM sleep and she wants to give me an ambien and try this again. She thinks I am much worse off then what it has shown.

She also told me that the VNS was definately messing with my breathing and that I need to call the company and talk to them about how bad it is suppose to do it.

Also after they hooked me up to the oxygen, I jerked all night. I told her I didn't know if it was part of the RSD or MS.

I started out not sleeping. Any other time I would have fell to sleep reading the book I took. When I finally got to sleep it was long enough for them to know that I needed the oxygen. They put the mask on me and the first one I couldn't handle. They have several types now she said. She finally put the old time one on me. She said when they bring the machine out I can pick which one I want.

At this point she doesn't know wheather the Dr. will just go ahead and send the machine out and put it on the setting they had it or if he will have me back but she thinks they need to have me back.

My breathing has become really bad since around March. I think it has a lot to do with my grieving over losing Bill. I ended up in the ER in April with the Heart Attack. I have an appt. with the Heart Dr. in August. I was suppose to go in last week but they called and changed it. I wanted to see this one Dr. and he is so booked that my best friend is sitting in a nursing home waiting to get in to see him and has been for 3 weeks now. She has been to him before so she's not a new patient.

I know we talk about the jerking but I never had it as bad as what I did last night. The nurse talked to me about maybe going to the Mayo Clinic. There is no way I can go there now. I don't have a way. Bill and I had been planing a trip to Arizona when he passed and my Dr. was going to have me to go to a clinic in California. I think I will try to get in and see my Neurologist again. He diagnosed me with the MS and I he might be able to tell me what is going on with the jerking and my feet.

I know I have went down more since losing Bill. I grieve everyday for him so it can't help but take a toll on me.

I was so frustrated at myself for not being able to sleep last night at all so they could get this done. I knew there would be a hitch. She did say though that she was going to send a prelimanary report to the Immunologist that I see Tuesday and to my PCP so maybe I will get some input from both of them.

Ada

I hope you can get some answers soon All this must be very tiresome and frustrating for you.

that sounds like a workout. i can't imagine sleeping while someone is watching me. i would be so conscious of them, i would never sleep. i hope you get some answers from whatever info they got. sleep is so important. i have slept well for years taking tranxene. if not for that, i would be horrible throughout the day.
you sound so depressed at the loss of your husband. i'm so sorry for you. please take care of you now though, that is what your husband would want you to do. joan

I think it is great that they saw so much of what was happening to you in your sleep.. so often we go in for tests and things are'nt happening at the time, or as Joan says we are too nervous to relax and have the same sleep pattern.

I think this will have a big impact on your daily life Ada because you will get a better sleep (safer too) and be able to have more productive days, you'll feel way more rested and this should help the depression alot too as your seritonin levels should increase with the better sleep patterns I should think.

I am looking forward to hearing more of this.. I have an ex that has similar sleep disruption as well. his legs move in a rithmic motion seems all night but mostly as he gets into sleep or before waking. All through the night I have watched and almost hourly he'd start rocking the legs and fro and his feet would look like he was listening to music in his sleep. An he'd stop breathing often, usta scare the bejesus outa me an I'd nudge him an he'd take a huge breath and fall back into a rythum fer a bit.. I got no sleep either some nights.

Any hoo sory to ramble on, I hope it all works out well and I am so glad that this problem is being adressed with you and as I say I think this could have an impact on the depression too. I realy hope so.. we all wory about you Ada and wish the best, I know this has been a realy rough nasty year for you.. but things will get better hon.. and you have us and we have you.. it's a good thing in this storm of life.

hugs big hugs for you,
Sandra