Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-30-2015, 01:17 AM #11
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Originally Posted by Russell View Post
Happy Birthday Jenn,
So sorry of the circumstances but I hope for the best for you.
We may not know each other but we know all too well what is going on.
Be well and safe...
Thank you Russell for the birthday wishes....and thank you for your kind words. I know that if anyone can relate, it's you all in this forum! Thank you again!
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Old 12-30-2015, 01:21 AM #12
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Hi Jenn,

I want to wish you a Happy Birthday!

We all suffer so much with this disease that has taken so much joy out of so many of our lives. Having the ability to get out and interact with friends and family is something that many of us have had to fight with being able to do, and it certainly can be depressing. Vent away when you feel you need to, or even if you feel alone. We are all here to listen to each other, support each other and help each other through these daily struggles that so many others take for granted.

The New Year is coming up. I hope it brings new joys to you, and, although I am sorry that you are here, that you may find some new friends here as well. Sending out hugs to show that there are plenty of us here that care.
Thank you Purplefoot....it means a lot to me to know that there are people who truly know my struggle. Thank you for letting me vent, it's rare for me but I think I had enough at that point. I wish you a great New Year as well with little to no pain as possible. Thank you for your caring heart it is truly appreciated!
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Old 12-30-2015, 01:25 AM #13
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Hello and Happy Birthday Jenn,

I am glad you reached out and shared with us. You are in a place where there are others who understand. You are not alone. I hope you will keep sharing with us. Together we are strong. May we all be filled with peace in the coming new year.

zinnia
Thank you Zinnia...I'm so glad to know I have people here who won't judge me and will allow me to be me, who encourage and support me thru this. It truly means a lot to me!
I hope that the New Year brings us ALL blessings of better days! Thank you again!
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Old 12-30-2015, 01:55 AM #14
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HUGS! Sometimes the days that are supposed to be the happiest end up being the worst because you are reminded of how much you can't do or how much things have changed. Know that everyone here understands and we are here for you. I am blessed to be surrounded by very supportive, loving people in my life...but there is no way for them to ever truly understand what we struggle with no matter how hard they try. And I wouldn't want them to...I wouldn't wish this disease on the people I hate most in this world and certainly not on the people I care about which is the only way someone can understand the daily, constant struggle we go through. The support I've found here on neurotalk has been life saving for me...so please let us be there for you. Take care and hopefully you get some relief soon.
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Old 12-30-2015, 09:43 AM #15
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Thank you Littlepaw.....I do have a therapist but for someone like me, I find it very hard to really open up and tell him everything because it kinda sounds like I'm just grumbling. That's just me. Not saying anything about anyone else who utilizes this way. Plus I kinda feel like he doesn't give me answers to some of the things I talk about. It's kinda like okay if I open up I wanna know what to do to "fix" it, sometimes I get the feeling that it's more a place for me to just vent without any type of help for me with the root issues. I mean it's good to get some of the things out but at the same time I'd like to know how to handle them, what can I do to make it better? Ya know? I'm actually a really private person, which I guess makes it hard for me to talk to people about what's going on in my personal life, which is why it's pretty bizarre that I posted something on here. Lol! I probably should find someone else who would suit me better but I'm just too tired. Thank you for commenting and letting me know I'm not alone. I do appreciate every word you said! Thank you again!
Mahalo Jenn,

I am glad you have a therapist. I agree it can sometimes seem like just venting. When I sought a therapist I knew myself and the modalities well enough to realize that a traditional talk therapy wasn't going to get me all that far. At that time I could talk all day about what happened to me and not really move through it.

Different types of work benefit different people. I did exceptionally well with EMDR, Eye Movement Desensitization Reprocessing. It bypasses the conscious brain, works quickly and is used a lot with trauma and pain. I didn't notice as dramatic an effect with hypnosis but did feel it helped with pain in general.

If you are not feeling the love with your current therapist or their technique it may be time to try something or someone else. I really clicked with my therapist and that feeling of safety and rapport helped me do the work. I found her on the Psychology Today website's provider database and just looked for people with experience with illness and pain who did EMDR. That limited the field significantly but I feel fortunate to have found someone I worked well with on the first try.

Keep up the good work,
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Old 12-31-2015, 03:49 AM #16
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hope you had a Happy Birthday Jenn! and i hope you know that you have found a great place here at NT for comfort and support. having friends here at NT has helped me cope so much better with my rsd and i am sure they can do the same for you. i hope you new year is better for you. take care.
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