[IamJenn]

Happy New Year to everyone....I hope you all have had a great start so far. I'm hoping anyone someone can help me. I am in serious need of a Neurologist that understands CRPS/RSD here in Hawaii. I'm currently only seeing my Pain Mgt. Doc but I've been experiencing some weird cognitive things like not being able to remember stuff or even speak what I want to really say. I believe my rsd has spread to my right foot and I'm having major problems here at work that put me at flares ALOT. If anyone can refer me to someone or knows where to go with this that would be awesome and I thank you in advance!!!!!


Aloha,
Jenn

[Littlepaw]

Aloha Jenn,

These people might have an idea who could help.
http://www.crpshawaii.org/

I have had good luck finding quality doctors at educational institutions where they get a lot of tertiary referrals. University of Hawaii Neurosciences might be a resource too.

[RSD ME]

hey jenn. i hope you feel better soon. sometimes the meds pm drs prescribe for rsd i.e. neurontin/gabapentin can cause problems with speech, memory and vision. sometimes the side effects subside after a few weeks of taking this med and sometimes they don't and you just have to tolerate it ( at least that's what i do). i hope you find a neurologist to check just to make sure what's going on. i would also let your pm dr know what's going on and maybe he can help you too. i am not a dr and am just giving you my experience with these symptoms so seeing a dr is the best idea imo. there are some good drs out there who are knowledgeable about rsd. you just have to keep searching for them. sending healing thoughts your way.

[nornirn]

Hi Jenn, Littlepaw and RSDME,

Have any of you tried Pea Pure? It's a bit tricky to get in the U.S. nowadays, but it comes highly recommended by Dr. Sajben, among other CRPS-savvy doctors. My wife's parents live in the U.K. and have ordered it for us for her to try. There is a group called FitEyes that helps people get it in the U.S. It's supposed to be very helpful for allodynia and neuropathic pain in general. Links with more information below. She hasn't tried it yet so I can't vouch for it, but it looks interesting:

http://palmitoylethanolamide4pain.com/tag/crps/

http://painsandiego.com/category/peapure/

http://fiteyes.tumblr.com/post/87439...fiteyes-estore

Originally Posted by RSD ME

hey jenn. i hope you feel better soon. sometimes the meds pm drs prescribe for rsd i.e. neurontin/gabapentin can cause problems with speech, memory and vision. sometimes the side effects subside after a few weeks of taking this med and sometimes they don't and you just have to tolerate it ( at least that's what i do). i hope you find a neurologist to check just to make sure what's going on. i would also let your pm dr know what's going on and maybe he can help you too. i am not a dr and am just giving you my experience with these symptoms so seeing a dr is the best idea imo. there are some good drs out there who are knowledgeable about rsd. you just have to keep searching for them. sending healing thoughts your way.

[Littlepaw]

Originally Posted by nornirn

Hi Jenn, Littlepaw and RSDME,

Have any of you tried Pea Pure? It's a bit tricky to get in the U.S. nowadays, but it comes highly recommended by Dr. Sajben, among other CRPS-savvy doctors. My wife's parents live in the U.K. and have ordered it for us for her to try. There is a group called FitEyes that helps people get it in the U.S. It's supposed to be very helpful for allodynia and neuropathic pain in general. Links with more information below. She hasn't tried it yet so I can't vouch for it, but it looks interesting:

http://palmitoylethanolamide4pain.com/tag/crps/

http://painsandiego.com/category/peapure/

http://fiteyes.tumblr.com/post/87439...fiteyes-estore

Yes, I have tried PeaPure and have felt it was helpful. I've been on it off and on since the beginning. I order direct from RS4supplements in the Netherlands and it gets to me in Austin pretty quickly.

[IamJenn]

Thank you everyone for the suggestions!! I will explore them when I get a full minute to do so! I appreciate y'all and hope you're having a great day!!!! 😘