Ugh, it's a good news/bad news day. I just read your ketamine thread and now this one. I'm so sorry you have to cancel your trip. You must be terribly disappointed. Your boyfriend too....

I hope your procedure goes smoothly and takes care of your mouth pain.

Sending thoughts of healing and comfort.

I don’t understand how an operating room will be helpful. You need to be numbed then blocked for the right teeth awake or asleep. That was the problem I ran into for my dental work. The endodontist who said he would do the blocks for me, chose to just numb me. Wasn’t enough. The nerves need to be blocked. Try googling what blocks for what # teeth. You are not alone, even though there seems to be no medical articles on this subject.

I have had RSD since 1984. When they do a root canal, not all nerves are taken out… impossible. So in doing a root canal or having an extraction, it is critical to have the numbing and then appropriate blocks. If not done, the RSD will spread to that area. That is what happened to me.

I have had 1 oral surgeon and an endodontist who think if numb longer the nerves will behave. No, they won’t. The nerves need to be blocked.

Yes, I know the new name from the WHO is CRPS.

Can you tell me who this doctor is ? I have gone to 2 oral surgeons and they are not familiar with RSD, CRPS or any of it. No interest and think I just need a local numbing. Scary!

I have been dealing with severe dental problems for the last 3-4 years! On Medicare so its not covered where I go! Since all the nerves are affected by this CRPS my teeth always need bonding and a lot more done its getting to the point that the other day when I was flossing my teeth 1 tooth just popped out and I had about 1/4 of the tooth left. Also want to know if anyone on this site has a white coating on their tongue? One last thing I have to pay for this special tooth paste called SF 5000 Plus with 1.1 sodium fluoride which also is not covered by my insurance. It is half the size of a normal tooth paste! Cost's about $24.00 per tube. Just have this gut feeling that eventually I will loose all of my teeth! Not very upbeat but just having so many problems! It seems like 1 tooth gets bonded and by the next few weeks another one needs it! Hope that others are not having this problem! Breezy55

Hi, I am dealing with a similar situation now myself. Getting RSD in the mouth makes things really hard. I had a deal worked out with an Endodontics as they do a lot of blocks to do root canals. The woman who I had the deal with and was well versed w RSD, moved away. I used her x partner who agreed to do the blocks for me.
I had a situation come up needing blocks. Got the endodontist and dentist lined up together. The endo chose to numb me- no blocks…
Result is in full body flare. I will work on getting my body and mouth back, but have no idea what to do next.