I just wanted to say I am thinking about you and sending good vibes. I pray that all the details get worked out so you can get the care you need as comfortably as possible.

Just as Littlepaw says "I pray all the details get worked out".

I have SFN and it's been giving me problems about once a week in my gums and teeth. I didn't think about it until I read your post but I guess it is the nerves to the teeth that are being effected by my SFN. When it hits it is like a horse kicked me in the mouth !

I haven't had my teeth cleaned in almost 3 years since this started and I'm scared to death to have it done. But I know I'm going to have to break down and just do it.

Take care and wish I could offer some suggestions.

Debi from Georgia

i have had rsd in my mouth for almost two years now. i am sorry you have it too. i was getting extra novacaine, then extra novacaine and laughing gas, to getting some of my teeth pulled because i couldn't take the pain, infections, dental procedures or root canals done anymore. i am looking into one last option before i think about getting all of my teeth pulled in the back and getting bridges. it's called sedation dentistry. i don't know if insurance will cover it but i figure it's worth looking into. i learned about it from others on this forum and hope maybe it might help you too. from what i understand you are put to sleep while they are working on your teeth and you don't feel or remember anything. i hope that whatever you decide to do you find some pain relief from the rsd in your mouth. sending healing thoughts and soft hugs your way.

Are you saying they are getting dental work under Ketamine anesthesia? My concern is the nerves still need to be blocked once one has RSD in the mouth/face. A normal person can get a dental implant with just lidocaine. We become special needs patients and must have the nerve blocked.
So that means after the numbing, anesthesia blocks are injected into the tissue to block the nerves from knowing anything was even done.

Thank you!