Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-07-2016, 07:59 PM #11
Jerie Jerie is offline
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Jerie Jerie is offline
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Join Date: Sep 2011
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Hi everyone,
Just wanted to clear a couple things up. One is I said "central oven on" which just meant it its displaying centrLized symptoms with core burning or internal type burning. It's about progression. I believe I had this diseased 12 years undiagnosed and had bouts of weird stuff dismissed by Drs for years. I had a foot surgery and I had a spontaneous spread body side of burning nerve pain. Truth is is wasn't an instantaneous manefestTion of RSD. It was a late stage diagnosis. It took 4 months to spread burning pain. It took dozens of nerve blocks and infusions to get any resemblance of health back. I'm still not healthy. I still have severe flare ups. Do what you need to do to get core burning under control and settle sympathetic maintIned burning down. Jen said she has had this disease a long time. I would get very proactive to slow it back down I was afraid because no one believed me and I had no support. I got a lot of good info here, you can too. My advise is probably what vision was implying. How you respond is everything. Don't get dumped, one thing at a time at dr. You need aggressive but I doubt you'll get it so keep stress down. Take sedatives if you have them. Look up central pain syndrome and see if you can relate to that. Drs have heard of that, so say things like you heard of central pain syndrome? My RSD is like that. They'll realize your pain situation then.
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Old 04-19-2019, 06:04 AM #12
vijaish vijaish is offline
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vijaish vijaish is offline
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Hi

I too have those kinda minute electric shocks in the lower rt abdomen . I had a nerve injury there because of vigorous running and improper rest. Think when the nerve is healing you get that twitches. Think its an indication that the nerve is getting ready for transmission of signals.
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