Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-30-2016, 04:58 PM #1
newyorkmets newyorkmets is offline
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Join Date: Sep 2015
Posts: 35
8 yr Member
newyorkmets newyorkmets is offline
Junior Member
 
Join Date: Sep 2015
Posts: 35
8 yr Member
Default SCS Trial Success?

I am almost finished with my trial with Boston Scientific Precision Spectra and it has been pretty amazing. I see my doctor again next week to take it out but am still a bit nervous. My pain level has gone done and is more consistent than it was with blocks, but I have to turn the intensity to 30-40%. The biggest thing for me is that the shaking in my leg has stopped and I'm able to put my foot done when I'm exercising or doing therapy. The hardest thing other than the wires on my back is when I'm switching programs and the stimulator stops for a couple seconds. The burning comes back with vengeance, although it's a small trade off if its something I get used to. We're discussing having paddle leads installed so it doesn't migrate. Does anyone know about this? It's expected to be more of a invasive surgery with a pretty long recovery time. I suspect most get frustrated during this time and want it out shortly after but I'm trying to think of the big picture or the four days of relief I've had. How do you expect this machine to limit me in the long term? Will I not even notice it there after a while or will I have to live with it as best as I know how? My biggest worry is that technology is always rapidly evolving so I don't want this form of therapy to be obsolete in five years, which is how long they say I'll have this in me if all goes well. The problem is I don't have that time to wait, since I'm a student on the verge of completing my studies. What questions should I ask Monday about the permanent surgery? It's tough because the first part is recovering from the back, spinal cord part then on to my left leg. I'm hoping that I'll be able to take pain medicine that actually work for me when I'm down to a human level of agony. Really, I just need some support and reminder of the possible benefits because in this happy time, I feel scared. Thanks for listening
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