Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-24-2016, 10:08 AM #41
Jerie Jerie is offline
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Jerie Jerie is offline
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Originally Posted by Jerie View Post
Hi everyone! It was my insurer who sent out letters to my providers I didn't fill cymbalta not the script company. That being said I spent$140 informing every past dr and every pharmacy they have no permission to share electronic records with anyone registered mail and to shut the pie hole of hateful providers mouth to mouth crap too.
Than I called my script provider and asked to be off their shared data base and they deny it exist yet my pharmacist participated in it by sharing live feeds to providers.
So please tell me where the heck is this secret data base and how to I end their game in my medical care? I'm over these nasty providers too. If you are rude you will be dismissed. They can say anything in your records and to your face and on the phone and they are a protected class of ***holes. Never has a complaint about a providers rude behavior ever resulted in anything but my dismissal. Jerie
Hi, i am so excited. I found a PC who will manage pain meds. 1/2 hr from home, has admitting rights to hosp 1 hr from home. Will try ketamine medically necessary for meds, precribed me pain meds that actually are sufficient to control pain too untill i get all my meds. Never have to go to ER for help, she can admit and will do pallitive care for flare ups! I gave her a list of every med place ive ever been and told her they were cut off from sharing info. I am only using their medical system for every thing. So i can use my insurance for meds dont have to hide and have support. Can get neuro or pm tefferral if i need procedure. Dont have to pay $500 pm appt and drive 5 hrs for a script anymore! Thank you Jesus. I told her aboit PTSD and issues with dr teporting me as drug seeker. Also said i want to have a normal life. Not revolving around drs. Im traumatized. I want to start where i am now not relive past. Gave her list of procedures and outcomes. Told her i want progress notes from each visit. She was great i pray this last forever! cautiously optimistic!
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Old 02-24-2016, 02:03 PM #42
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Littlepaw Littlepaw is offline
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Jerie,

This is fantastic news! I am so happy for you. I hope this turns out to be every bit as good as it sounds. I know that will take a lot of stress off you. Having a caring, competent doctor in your corner is such a help.

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Old 02-24-2016, 02:52 PM #43
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Very happy for you Jerie and hope this is the fresh start you need to get the medical care you need. Out of some of the worst situations...sometimes you end up EXACTLY where you need to be. Sending prayers this works out for you and that you get the relief you need and get far far away from the bad situation and people that were making you worse. Hugs.
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