Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-06-2007, 12:21 PM #1
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Question Please help me figure this out

You know when you have "slept wrong" and get a crick in your neck? That is how my hip is feeling only 10x worse. If I move my leg outward it sends an achy pain down to my shin. I can't get out of bed without rolling onto my left side and picking myself up that way. I also cannot sit on a toilet (sorry for this) and wipe without the pain happening.

That abductor machine that works your outer thighs - that is the area mostly affected (that machine would kill me right now).

What do you think? I need any and all the possibilities or thoughts you may have to offer. Is it related to the RSD? It's on the same side and I have been having little (maybe more than a little) issues with my hip/thigh as well as my affected knee.

When feeling decent, I try to stretch, could I have just stretched too much? And, because of the RSD, a less than normal stretch was still too much for it?

Completely confused - I do have a call into my doctor also. So all the info I can get would be great.

Thanks in advance.
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Old 07-06-2007, 12:58 PM #2
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Default Hi Christine,

It could be artritis satting in also. I have it in both hips. I also get the same problem you have at times. Mine comes from not moving around enough at times. It feels like I have pinched nerves a lot of times also. I have had triggerpoint injections in my hips to calm down the inflamation that comes with the arthritis.

It could be the RSD spreading. I don't know how in tune you are with your body yet but I can soon figure out what is RSD and what isn't with mine.

Use a sleeping pad on that side. Also I use Lidocaine patches. I throw one of those on and in no time the pain lets up especially if it's not RSD.

Ada
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Old 07-06-2007, 05:49 PM #3
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Hi ya Christine! How long have you had this pain? I too feel the same way as Adda. Maybe the RSD has spread. This happened to me.. I went to bed one night in May, thought it was the way I slept.. but here the RSD had spread to my shoulder. I forgot(yesterday) and brushed my hair real quick with a hair brush, and wham! unbearable shooting pain all through.. It's awful. Please let your Dr. know whats going on, Christine! I too have trouble wiping) It's awful! Love and hugs to you sweetie! Love, Desi
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Old 07-06-2007, 06:40 PM #4
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In response to both - thanks.

Ada, my neighbor gave me a lidocaine patch. It helped briefly (max 10-20 min maybe) and then didn't after that. This is definitely a new pain in the hip.

Desi, I have been experiencing this pain now for two days. I called my doc. I am to go to Urgent Care. Will let you know what they say. Anytime I have dealt with other docs other than my PM & GP than they tried to diagnose something else and look at me funny about RSD.

About a month ago, I was driving and my hip started hurting badly. My seatbelt was pushing into my hip and hurting it soooo badly.

I can accept that it could be spread, however, I would hope it's not. LOL
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Old 07-06-2007, 07:04 PM #5
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Hello,
The aching pain down to your shin sounds like sciatic pain. Of course it is not appropriate to diagnose over the computer but the restrictions in movement and the pain you describe pretty much fit a sciatic nerve inflammation.
One excercise that may help, although I don't know what your usual capabilities are, is to lean forward against a wall with your arms, or elbows, which ever you can manage then extend your bad leg back(as if doing a ballet move). This will take the strain off the nerve and might give some relief.
Of course it will take a doctor or physiotherpaist to diagnose properly and with a bit of luck it may just need some physio and anti-inflammatories to help you.
I hope you can get relief soon
regards Tayla
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Old 07-09-2007, 09:39 AM #6
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Default Hi Christine,

How is that leg doing? Did the meds help.

Usually the flareups calm down after awhile.

Hope so anyway.
Ada
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Old 07-09-2007, 06:22 PM #7
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Originally Posted by dreambeliever128 View Post
How is that leg doing? Did the meds help.

Usually the flareups calm down after awhile.

Hope so anyway.
Ada
Hi, yes the flare up has diminished. I am back to the vicodin for break-through pain. I have left messages for both my PM and my GP just to keep them both in the know.

Thanks again for all your responses and concerns. I have made some great friends, and at times really feel like I need everyone of you. The rest of the time I am just glad with the thought that you are there.
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Old 07-10-2007, 10:03 AM #8
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Default General Aches and Pains

I don't know if anyone else has experienced this...

I used to be able to tolerate an awful lot. As a truck and car mechanic, it would get a lot of bruises, cuts, punctures, muscle strains, etc. and just kept on going. Since the RSD - and as it has progressed - it seems that many minor issues get amplified.

I have a minor shoulder injury from a fall in 2001 that is not going away. I also was just diagnosed with Rheumtiod Arthritis and the pain in my index fingers kills me at times. And so on...

While I can't totally blame the RSD for all of the aches, it does seem that I am now less tolerant, whereas I used to be more immune to pain.

"Junk", you could be experiencing something like this as well. Ada suggested sciatia, and where other folks would simply do a morning stretch and move on, it stays with you.

Just my totally non-medical observation....

Hope you can get a handle on this.

Mike
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Old 07-10-2007, 02:08 PM #9
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Hi Mike! I know what ya mean!! man, I bumped my right leg on the corner of a night stand and I hurt so bad!! I too used to tolerate bruises, cuts, bumps(Black and blue) Now, it's like a "HUGE OWIE OWIE" LOL get better, Mike! Love, Desi
Hi ya Christine! how are things going for you as of late?? Love, Desi
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Old 07-10-2007, 03:05 PM #10
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Quote:
Originally Posted by bassman View Post
I don't know if anyone else has experienced this...

I used to be able to tolerate an awful lot. As a truck and car mechanic, it would get a lot of bruises, cuts, punctures, muscle strains, etc. and just kept on going. Since the RSD - and as it has progressed - it seems that many minor issues get amplified.

I have a minor shoulder injury from a fall in 2001 that is not going away. I also was just diagnosed with Rheumtiod Arthritis and the pain in my index fingers kills me at times. And so on...

While I can't totally blame the RSD for all of the aches, it does seem that I am now less tolerant, whereas I used to be more immune to pain.

"Junk", you could be experiencing something like this as well. Ada suggested sciatia, and where other folks would simply do a morning stretch and move on, it stays with you.

Just my totally non-medical observation....

Hope you can get a handle on this.

Mike
I can totally relate. My dogs tail is a whip and before it would slightly hurt, but ever since getting RSD it hurts on the most extreme level. Also, my pain tolerance level has been affected all over my body. I have RSD in my R.knee, however, I can get hurt/bumped/etc. anywhere else and the pain just doesn't feel right. It's always too much for something I used to be able to withstand. I have heard that it's just due to the fact that even though the nerves are mainly affected in the injury site (if you're not full body) your nerves all over become more sensitive.

Desi: I am doing good. I am now back down to vicodin level, happy happy joy joy. The best part is I am actually going into the living room to sit and not laying in my bed ALL day. That is a plus. I have also been starting one or two loads of laundry. Not overdoing it though.

How about you? Feeling better since the wedding?

Hugs.
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