I'm in the hospital as I write and have been for days. Things had gotten very bad for me. I had both endoscopy and colonoscopy at the same time under general anesthesia today. I had a gastric emptying study yesterday. I definitely have gastroparesis so my stomach is not emptying as I suspected. It’s from the POTS or the CRPS. Probably pretty far along apparently.

They didn’t find colitis or obstruction in the endoscopy or colonoscopy when I was finally ok enough to get there (it was an eventful day before and morning in a really bad way primarily because of the Addison's and partially the POTS, plus my CRPS was flaring). They cut out some polyps in my colon which are usually nothing. But the main thing was to take a lot of biopsies so they could see the muscle/nerve problems in my stomach and bowel that move the food along and digest it. There was still decomposing food left in there from three weeks ago when I last ate solid food. I actually feel better without all those toxins in my system but still very weak. I've had uncontrollable diarrhea for weeks and the prep sure didn't help. There is no possible way I could have done this outpatient with the prep at home. I have had a colonoscopy outpatient with prep at home in 2008 but this was a different story. I was in better health at the time although I've had relapsing and remitting POTS since 2007 and only got the CRPS three years ago.

We won’t know the results of those biopsies for several days but the doctor came in today afterward and asked me if I wanted to go to a nursing home. I said no I wanted to stay home with my dogs so he set me up for home health care nursing to come evaluate me for their service or hospice. They will come within 48 hours of my discharge. They wanted to come as soon as I got home but I said no. So it sounds like this is pretty bad for me right now. The doctor acted like they may not discharge me tomorrow as planned because I’m not in good enough shape. My electrolytes are messed up for one thing and they need to get that straightened out. it’s just not something you can be very far off on and live. So we’ll see how well I am tomorrow but I’m going to push to go home. I’m only on IVs still…no liquids or anything else. Not even water. Most of my meds IV or injection because i'm not absorbing oral meds. And I take a lot of meds. I’ll stay that way for now to let things settle down if they will.

I don't want to scare people. I do have a lot of other problems besides the CRPS like POTS, Addison's, thyroiditis, and other autoimmune and rheumatological diseases. Most of you don't have all this. I'm just relaying my experience today. I just hope it's not as grave as they made it sound today. I need to process this all and decide what to do after we get the finals results. I just felt like writing something to some group that might understand. I'm a little shocked. I feel like my whole nervous system and vascular system is broke beyond help at this point.