Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-23-2008, 10:49 AM #11
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Hi Mike,

Sorry that you have the bad jerks also - I know how scary and painful they can be . I also have the really bad jerks, my PM Doctor and Neurologist diagnosed me with Myoclonus about 2 months ago now. The spasms are worse on a night but I get them during the day also.

This is a video of the spasms in my leg - the spasms started in April 2008 after an ingrown toenail removal on my RSD leg: http://uk.youtube.com/watch?v=xIXakErNBpE

I wish I could give you some advice on what could help, but so far I haven't found anything that helps. I have tried numerous muscle relaxants including Baclofen, Propranolol, Diazepam, Kenadrin etc.

I really hope you can get some relief real soon - you are in my thoughts

Alison
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