Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-04-2016, 02:53 AM #11
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Originally Posted by -Spike- View Post
WOW! What a great idea! Do you charge for those? I'm going to have to take a look at Amtrak. I wonder how long that would take me!!!!
My normal thinks are pretty cheap. Serious thinks cost a bit more but I frequently run special pricing...if I really need something and don't have the jingle...

Where are you headed? Coming to cook with me???
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Old 03-04-2016, 03:32 AM #12
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My normal thinks are pretty cheap. Serious thinks cost a bit more but I frequently run special pricing...if I really need something and don't have the jingle...

Where are you headed? Coming to cook with me???
Sure! Do you live in Mesa?
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Old 03-04-2016, 07:15 AM #13
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I usually am able to elevate my foot a little during flight by propping it up on my underseat carry on bag but it's not fully elevated. When I did fly first class that one time there was definitely more room but the bag definitely still doesn't get it fully elevated. Might help a little though.

Also forgot to mention before that I am always the last off the plane too. I gate check my walker so it is waiting for me when I get off the plane so waiting not only makes sure I don't get bumped by those anxious to get off the plane but the walker is always there by the time I get off too.

If you were to take a really late, ovenight flight then there would be a good chance the flight wouldn't be full...meaning maybe you could arrange to have an empty seat next to you which would allow you to put your leg up. I don't know if you can buy two seats...I would think you could because they require it of some people so depending on the cost of a coach ticket it might be worth it for your comfort if that is allowed.
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Old 03-04-2016, 11:43 AM #14
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I don't fly all that often, and chances are, I will not be flying anytime soon. I could make one small suggestion though. At check in, ask to see how booked the flight is and if there might be another flight at a different time in the day that has fewer passengers. The last time that I took I did that, and ended up moving from an over booked flight to an earlier flight with only 10 passengers. It was kind of nice having most of the plan to yourself. The flight crew let us sit wherever we wanted and felt most comfortable. It does mean the possibility of spending more time at the airport, but your flight could be a lot more comfortable.
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Old 03-04-2016, 12:18 PM #15
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Good question Spike! I do not plan on traveling anytime soon but I was still wondering the same thing. One of my biggest concerns is vibrations but I think no matter what mode of transportation I use there are going to be vibrations. I find all of these tips very helpful!
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Old 03-04-2016, 10:45 PM #16
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Sure! Do you live in Mesa?
Well....seriously considering another move because I have been so much of a burden to my kids and my parents are too old to help me, so I'm looking into locations where weather may not be as much of an issue that I may have more ability to afford long term

(and that sentence just ran on and on and on and...)
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Old 03-04-2016, 10:59 PM #17
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Well....seriously considering another move because I have been so much of a burden to my kids and my parents are too old to help me, so I'm looking into locations where weather may not be as much of an issue that I may have more ability to afford long term

(and that sentence just ran on and on and on and...)
Mesa is where I am heading just for that reason. Low humidity is my friend. Rain and snow and me just don't get along as long as I have CRPS! So, it won't be long and Az. will be my home!
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Old 03-04-2016, 11:06 PM #18
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Mesa is where I am heading just for that reason. Low humidity is my friend. Rain and snow and me just don't get along as long as I have CRPS! So, it won't be long and Az. will be my home!
Was just talking with my oldest daughter about exactly there...for those same weather reasons! I think I would be worried that it might be too hot...is there such a thing???
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Old 03-04-2016, 11:10 PM #19
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Was just talking with my oldest daughter about exactly there...for those same weather reasons! I think I would be worried that it might be too hot...is there such a thing???
Oh, it does get hot there. That is for sure. With me, the humidity is what kills me. My CRPS doesn't like the heat, but.. it really tortures me when the humidity rises. For me, it is a trade off. I'm trading hot and humid and wet and snow for just really hot with very very low humidity. And the real hot months are only for 2 to 4 per year. Bring it on, is what I say!

Also, no more winters! And that is definitely something that I'm looking forward to.
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Old 03-05-2016, 10:31 AM #20
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I agree with Catra about propping on the underseat stowed bag and do the same thing. I am pretty short though. Getting a seat with the 4 inches extra leg room may make this easier for you Spike.

This summer I am going to be on a very long flight. I booked bulkhead and plan to take my little three legged collapsible camp stool to elevate on. So long as the fasten seat belts sign isn't on I don't think it will be a problem. Last long flight I pulled my rolling backpack out and propped on it in the bulkhead. This helped absorb some vibration too....

I can say as a Texan, that heat can definitely be a problem. Although we do have more humidity here. Budgeting in for extra AC you may want to run and making sure your apartment, condo, community has a pool will make those long hot months more tolerable. Believe me 3 months at over a 100 degree temps do feel quite long. Not that I would trade it for ya'lls winter....
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