NeuroTalk Support Groups - Pacing (long post, sorry)

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Pacing (long post, sorry) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/233528-pacing-post-sorry.html)

Sorry I haven't replied sooner...I've been reading but not feeling very well lately and not able to post much. I know it feels good to get stuff done and I certainly go through stretches like this too where no matter what the cost I just need to DO stuff. And honestly...keeping busy for me is a good thing and why I still work (and can't wait to get back to it now)...keeps my mind occupied with something other than the pain. Not that the pain is less or goes away...but when all you can do is sit and think about the pain it feels so much worse. Even if there's hell to pay in the way of a flare up after...sometimes it really is worth it for that short period of normalcy.

Just remember to take care of yourself. Hugs.

Quote:

Originally Posted by catra121 (Post 1203720)

Thank you for the vote of confidence and well wishes!!

At this moment, I am so incredibly grateful that my mom will be coming tomorrow after my business meeting. I worked from 8:30a - 6:30p (I DID a bit more resting today), then I took a nice long jacuzzi epsom bath. My kitchen, entryway and powder room got done today. Unfortunately, my knee/leg is NOT happy with me and I am not sure I can do anything more than answer the door & walk this lady out tomorrow. Thank goodness my mom is bringing me a chocolate bar!

wow a jacuzzi epsom bath sounds so good for an aching body. Glad you are taking care of yourself. It does the soul good to see their accomplishments, even if you do hurt later. I was feeling overwhelmed this morning and talked to hubby about some of the things I thought I had to do, just being able to talk about them shrunk them down to their real size. He offered to do one, we crossed some of those things off the list lol and broke the others down into baby bites.

How do you eat an elephant?

one bite at a time

and now that I have RSD

there is lots of resting while chewing in between. hahaha
:-)
peace
zinnia

Well...I got 4 days out of it.

I know in my original post I said 'pacing is for pansies & I ain't no flower' but I DID pace myself. Granted, not as much as I probably should have but I would sit for about 20-30 minutes after each 20 minutes or so doing stuff. If I was in one place, I would go a little longer. If I was back & forth walking, I would stop a little sooner. It took 4 days to get a 10x12 room, a kitchen, a foyer & laundry room each partially done, so I don't think I REALLY went overly. But I DID do more than my body wanted.

I'm so grateful my son came today. Did some things around the house, made dinner & had me meet his new girlfriend. He was also here to help me up the stairs to settle in.

My pain level has shot pretty close to the roof & the spasms are back. I'm thinking my furbabies and I will be in my room at least tomorrow.

It was wonderful while it lasted & I'm not sure I can say I regret one single thing.

Thank you for sharing with us Always Believe. You have been in my thoughts and prayers. I am glad your son is there helping you. Family support is such a blessing. My son is having some serious problems with his teenage son. I went over yesterday and just sat with him. I do not have any answers. I helped him look at some options. It felt good that he called me and that he wanted me to come over, just to be of support. His big dog worries me around my foot, he wants to stand and put his paws on my shoulders, he thinks he is a huge puppy. Hubby usually goes along and keeps the dog entertained. I did have to take my shoe off when I got there.

I was thinking this morning about the importance for me to keep resting my foot, balance of using and resting, and even to see the resting as a positive, IF I do the resting THEN I will be able to do the work. You are helping me to see this from a positive view. Perspective can sure changes things.
:-)
peace
zinnia

Pacing (long post, sorry)

Quote:

Originally Posted by zinnia (Post 1204092)

Oh man, I hope the situation with your son finds an easy resolution. My son's dog worries me too! I'm glad your husband can keep the furbaby occupied!

My daughter is going through a bit of balance issues herself. I realized that while I taught my kids to give everything their best shot, I never focused on balance. I am learning myself how important balance is.

Quote:

Originally Posted by Always_Believe (Post 1203581)

And...I could never compete with Wonder Woman....gabapentin took the body that fits the uniform!!! I'm 'Wider Woman' ;)

ROFLOL

Woman! You make me laugh.

hi always. i hope you are feeling better today. i try to move as much as i possibly can too but also find that if i don't pace myself i will end up with an rsd flare that can last for days if not weeks sometimes. it's frustrating but that's what rsd can do sometimes. i hope again that you are feeling better.

Quote:

Originally Posted by RSD ME (Post 1204640)

Thank you.

Alas, I continue to be hit with setbacks. Nothing due to what I've been doing. Everything to do with my 'support system'. Unfortunately, I NEED my support system...however, it seems they all have other things to do and my needs do not factor in. At least not without being a whiny b&*@h.

Even programs through the state/county/social services are not able to help. My SSDI is ~$25/month over.

If there are things I can control, I do my best to figure out solutions. Sadly, most of the issues I am dealing with are not under my control (The amt of SSDI I receive; utility bills (they are all on budgeted amts); no medical treatment; not being able to work; not being able to complete my ASN). The only things I see left to do are:
-Sell my house (most likely at a significant loss)
-Buy another house that is more conducive to my needs in a location that is more friendly to my RSD (no cold/no snow/limited rain) - which would leave me distanced from my aging parents which was why I moved here to begin with
-Totally give up ANYTHING and EVERYTHING regarding all things nursing (I was looking at reinstating my IL license to at least have that on hand ~$250 eeek! Simply cannot afford that with property taxes coming.)
-Apply for Medical Cannabis Card ($50/application; ~$60/product....not sure I can really swing either and certain this would affect my nursing license)

I'm so over everything right now. I have reached out for help and get slapped down constantly. The ONLY help I have is being able to vent and someone listens...nice & appreciated but doesn't get my trash can to the curb & back or go to the store for me or get the laundry done or...

I :heartthrob: you all!

Quote:

Originally Posted by Always_Believe (Post 1204646)

:(

I am so sorry to hear all this...looks like you have some very tough decisions ahead of you and I feel for you. It's even worse when you feel that you have no support system that you can rely on. Even with a support system I still feel frustrated at my inability to do things like take out the trash myself...and it's made worse when the person who DOES take the trash out complains about it (even in a joking way).

I wish I could do more for you than just be moral support...that I could offer some fine words that would just make it all better and easier...but I got nothing. You are in my thoughts and as always if you need someone to listen I am here.

Hugs.