Oh Believe! I am so sorry to hear that you are going through all of this. I have been avoiding responding on too much here lately since I have been dealing with some of my own problems, but I wanted to stop by and give a hug.. You really sound like you needed as much support from us as we can give. The emotional support from all of the members here on NT can help a lot sometimes. Maybe we can't help taking out the garbage, or making the big decisions in life that only you can make, but we are here to listen when you need someone who can understand some of what you are going through.

Thank you. As anticipated, I don't qualify for in-home services from DHS. It would seem while in a flare, I do but otherwise not. For my ability to qualify, my flare has to last or be expected to last at least 12 months. I've had flares last almost 3 months...12 months would kill me.

This is one tough disease for many many reasons. And you are hitting on a very important cause for hardship. A person can really be suffering physical CRPS pain in a terrible way, and life just keeps rolling on for those around that person, including govt, insurance, neighbors, family, etc. They keep moving on, while the CRPS patient is trapped in hurt and disability. Then when we find ourselves without resources and with few to no answers it really and truly does lead to frustration. It happens. It is very real. I too wish I had a witty saying or a brilliant break through idea in this case. But, I don't have that. The best that I have is my friendship. And I freely offer that to you.

I you Spike

hi always. i wish i could help you more too but i hope it helps to know that i understand and care and am here if you need to talk. i hope things get better for you. i hope things get better for all of us suffering from this horrible disease. love and hugs.