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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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03-10-2016, 09:56 AM | #1 | ||
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Ha! My daughter is good at organizing. Cleaning? Not so much. OCD & RSD are NOT friends!!!
Both my mom & my son are coming to work...there is no 'play time' allowed yet! Just trying to make sure that the basic common areas are not of the "omg, I'm so embarrassed" clean & more " yes, please come in" clean for an impromptu meeting I have Friday morning. And...I could never compete with Wonder Woman....gabapentin took the body that fits the uniform!!! I'm 'Wider Woman'
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
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03-10-2016, 11:26 AM | #2 | ||
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Even though it's not a social visit I'm sure the extra help will be nice. |
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03-10-2016, 11:31 AM | #3 | ||
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The extra help is pretty much a requirement. No way I can keep this up. Been at it (as a flower...super pacing) for 2 hours and I've barely started and yet my body is nearly done. Hard to believe emptying the black water from about 6 tiles of the kitchen floor that it has been mopped in the past month. Ick. So many more 6 tiles to go...
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
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03-10-2016, 11:05 PM | #4 | |||
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Sorry I haven't replied sooner...I've been reading but not feeling very well lately and not able to post much. I know it feels good to get stuff done and I certainly go through stretches like this too where no matter what the cost I just need to DO stuff. And honestly...keeping busy for me is a good thing and why I still work (and can't wait to get back to it now)...keeps my mind occupied with something other than the pain. Not that the pain is less or goes away...but when all you can do is sit and think about the pain it feels so much worse. Even if there's hell to pay in the way of a flare up after...sometimes it really is worth it for that short period of normalcy.
Just remember to take care of yourself. Hugs. |
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03-10-2016, 11:17 PM | #5 | ||
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At this moment, I am so incredibly grateful that my mom will be coming tomorrow after my business meeting. I worked from 8:30a - 6:30p (I DID a bit more resting today), then I took a nice long jacuzzi epsom bath. My kitchen, entryway and powder room got done today. Unfortunately, my knee/leg is NOT happy with me and I am not sure I can do anything more than answer the door & walk this lady out tomorrow. Thank goodness my mom is bringing me a chocolate bar!
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
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03-11-2016, 04:08 PM | #6 | ||
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wow a jacuzzi epsom bath sounds so good for an aching body. Glad you are taking care of yourself. It does the soul good to see their accomplishments, even if you do hurt later. I was feeling overwhelmed this morning and talked to hubby about some of the things I thought I had to do, just being able to talk about them shrunk them down to their real size. He offered to do one, we crossed some of those things off the list lol and broke the others down into baby bites.
How do you eat an elephant? one bite at a time and now that I have RSD there is lots of resting while chewing in between. hahaha :-) peace zinnia |
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"Thanks for this!" says: | -Spike- (03-13-2016), Always_Believe (03-11-2016), BioBased (03-13-2016), Littlepaw (03-11-2016), RSD ME (03-16-2016) |
03-13-2016, 12:39 PM | #7 | |||
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Woman! You make me laugh.
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~ No Pain is Gain ~ -Spike- |
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03-16-2016, 11:02 AM | #8 | ||
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hi always. i hope you are feeling better today. i try to move as much as i possibly can too but also find that if i don't pace myself i will end up with an rsd flare that can last for days if not weeks sometimes. it's frustrating but that's what rsd can do sometimes. i hope again that you are feeling better.
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RSD ME . |
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"Thanks for this!" says: | Littlepaw (03-17-2016) |
03-16-2016, 11:31 AM | #9 | ||
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Alas, I continue to be hit with setbacks. Nothing due to what I've been doing. Everything to do with my 'support system'. Unfortunately, I NEED my support system...however, it seems they all have other things to do and my needs do not factor in. At least not without being a whiny b&*@h. Even programs through the state/county/social services are not able to help. My SSDI is ~$25/month over. If there are things I can control, I do my best to figure out solutions. Sadly, most of the issues I am dealing with are not under my control (The amt of SSDI I receive; utility bills (they are all on budgeted amts); no medical treatment; not being able to work; not being able to complete my ASN). The only things I see left to do are: -Sell my house (most likely at a significant loss) -Buy another house that is more conducive to my needs in a location that is more friendly to my RSD (no cold/no snow/limited rain) - which would leave me distanced from my aging parents which was why I moved here to begin with -Totally give up ANYTHING and EVERYTHING regarding all things nursing (I was looking at reinstating my IL license to at least have that on hand ~$250 eeek! Simply cannot afford that with property taxes coming.) -Apply for Medical Cannabis Card ($50/application; ~$60/product....not sure I can really swing either and certain this would affect my nursing license) I'm so over everything right now. I have reached out for help and get slapped down constantly. The ONLY help I have is being able to vent and someone listens...nice & appreciated but doesn't get my trash can to the curb & back or go to the store for me or get the laundry done or... I you all!
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
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"Thanks for this!" says: | -Spike- (03-16-2016), BioBased (03-16-2016), Littlepaw (03-17-2016), PurpleFoot721 (03-16-2016), RSD ME (03-17-2016) |
03-16-2016, 12:06 PM | #10 | |||
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I am so sorry to hear all this...looks like you have some very tough decisions ahead of you and I feel for you. It's even worse when you feel that you have no support system that you can rely on. Even with a support system I still feel frustrated at my inability to do things like take out the trash myself...and it's made worse when the person who DOES take the trash out complains about it (even in a joking way). I wish I could do more for you than just be moral support...that I could offer some fine words that would just make it all better and easier...but I got nothing. You are in my thoughts and as always if you need someone to listen I am here. Hugs. |
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