Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-16-2016, 12:15 PM #1
Seaglass1972 Seaglass1972 is offline
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Join Date: Mar 2016
Posts: 16
8 yr Member
Seaglass1972 Seaglass1972 is offline
Junior Member
 
Join Date: Mar 2016
Posts: 16
8 yr Member
Default CRPS right arm -

I am a new member today, and I originally posted this on the main page of NeuroTalk. A member suggested I check out this thread, so I am re-posting in here. Trying to figure out how to move around in here. Thanks! =)

Hello everyone,
Well here I am with my ongoing saga of CRPS.
I had a work injury 12/10/15 and now have CRPS in my right arm.
I call my arm New York, because she is the city that never sleeps.
She does what she wants, when she wants.
The temp of my arm is say, Alaska middle of winter...... It's always freezing cold and even the heating pad doesn't seem to help. And, I am like a piece of art work since the color change in my hand is like a mood ring.... Flesh, to pink, to purple, to freaky finger tips, to blue, to normal....
I have been seeing the work comp NP, and she has given me prednisone, which didn't help, a cortisone shot, no help, Flexeral and Ativan, they help with the spasm and sometimes I can sleep. I tried Gabapentin and tramadol and had HORRIBLE side effects. I am also a gastric bypass patients 4 years now, and I cannot even tolerate alcohol, so I think the meds are the same issue for me.
Because this is work comp, I am still fighting to see a neurologist. This has been horrible. I am lucky for the fact that each clinician I have seen have all said CRPS. But, work comp insurance company doesn't want to help with anything.
I am now in my second round of physical therapy, but I feel like an idiot. Every time she begins to work on my hand, I have tears fall down my face. The hypersensitivity is crazy and I feel like it is worse when I am at PT. They have me working in the pool, but it makes my arm feel like it weighs 50lbs and I become dizzy, feel like I might get sick and black out.
Does this happen to anyone else?? Does anyone else find the CRPS gets worse when someone is trying to help, like PT?
I am hoping this can get better and I am hoping I can see a neuro soon, especially since none of the meds they are giving me work.

I know this could be worse, so I am trying to remain as positive as I can.
Thanks for letting me rant, I am happy I found this web site because no one in my personal life can understand what this is like.
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BioBased (03-16-2016), birchlake (03-17-2016), Littlepaw (03-17-2016), PurpleFoot721 (03-16-2016), RSD ME (03-17-2016), shelbie4u (03-20-2016)
 


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