Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-27-2016, 06:21 PM #1
maygin maygin is offline
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Join Date: Dec 2014
Location: Wisconsin
Posts: 66
8 yr Member
maygin maygin is offline
Junior Member
 
Join Date: Dec 2014
Location: Wisconsin
Posts: 66
8 yr Member
Default Worse pain after 3-day ketamine infusion

Last week Tuesday through Thursday (4/19 - 4/21), I had the 3-day 4-hour ketamine infusion. I found it particularly challenging and experienced a lot of side effects. About half-way through the first day, I was awoken to my neighbor (also receiving the 3-day ketamine) having a severe hallucination. It freaked me out and I was unable to sleep through the ketamine after that, even after they gave me more medication to help me relax. I experienced headaches, nausea, and psychedelic symptoms. On the second day, the dosage was increased. I dozed some, but couldn't sleep. The side effects became substantially worse. After, I had a difficult time walking and was very weak. The third day, the doctor did not increase the dose and I found it easier to tolerate, though I still only slept for the first half of the infusion. Through the whole procedure, I had some increase in pain, but only with use of the affected limbs. The first day after the procedure, Friday, my pain had increased almost 3 points, was constant, and intense. While my pain went down about a half point on this Tuesday, 4/27, it's still worse than before the treatment. I called the doctor and the nurse told me that it's rare for ketamine to make the pain worse and that we need to give it more time. I do know that in research studies of ketamine infusion, a few patients have experienced worsening pain. I'm worried that's what happened with me.

1) Has ketamine infusion caused a flare for anyone that lasted longer than 24 to 48 hours (the amount of time they told me the pain could increase for)? How long did it last?
2) Has anyone experienced worsening pain after the ketamine infusion that didn't go away (i.e. it wasn't just a flare from the infusion)?
3) Does anyone know what the best next steps are? Is there a way to undo this? Will the pain get better as the ketamine wears off? Is there anything I can do?

Someone please tell me that I didn't go through 3 hellish days of treatment only to end up worse than I was before the treatment.
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