[newyorkmets]

Hi,

I hope you are all doing well and that today is a little more bearable than others. As you might know, I'm 18 years old and live in New York with CRPS in my left leg. I had a spinal cord stimulator implanted permanently three weeks ago and have seen a 25% decrease in pain, from a 9 to a 7. The main thing for has been that I am now able to bear weight without my limb shaking furiously. My doctor and I have come to the conclusion that I need intensive rehab since college for me starts in 4 months and I want to be better mobility wise then. I am looking for programs that are familiar with this condition and can help do that, preferably in an outpatient setting. I saw a few day programs but am not eligible for them since I graduated high school. I also understand that I might have to go inpatient, which is not ideal but may be necessary at this point. Traditional therapy once or twice a week has done nothing for me and something has to change. I have heard good positive reviews for Blythedale, the Children's Hospital of Philadelphia and Boston's Children. I am aware of Children's Specialized in New Jersey and have the PDF from the American Pain Society that shows a few others. I'd like to get your opinion on all this and would appreciate it if you could spend a few minutes researching for me. I want to preferably stay near the Northeast, not more than three hours away by car. I had an inpatient experience at Rusk Institute a couple years ago and did not like it there. Thank you in advance for trying to help!