Anyone had an implanted port?

lovefamilypets · 04-30-2016, 12:34 PM

Quote:

Originally Posted by SandyRI

I have had a port for several years. The first one that was implanted was done on my right side, which is my affected side, and it caused such a horrible flare I needed it removed. I waited a whole, then had another put in on the left side. I coordinated the surgery with a ketamine infusion and did fairly well.

Good luck!

Thanks Sandy for your reply. That was my concern, especially since both of my sides are severely affected.

NurseKris · 04-30-2016, 02:25 PM

I don't have a port but I have accessed many while working. One thing to keep in mind is accessing a port does involve a needle. It's a small needle but still a needle.

Unfortunately there is no way to tell exactly how your body will respond. How often are you getting an IV or blood draw? Is it possible to decrease the frequency of the test?

Good luck!

lovefamilypets · 04-30-2016, 05:43 PM

Quote:

Originally Posted by NurseKris

I don't have a port but I have accessed many while working. One thing to keep in mind is accessing a port does involve a needle. It's a small needle but still a needle.

Unfortunately there is no way to tell exactly how your body will respond. How often are you getting an IV or blood draw? Is it possible to decrease the frequency of the test?

Good luck!

Nurse Kris- thank you for this information! The doctor and nurse did not tell me that! They made it seem like this would bypass any needle stick completely once I had the port implanted.

I'm getting IVIG 2x every 3 - 4 weeks; I'm going to see if my Dr. would consider 1x every 3-4 weeks or what his thoughts would be on that. THank you so much!

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