Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-01-2016, 11:59 AM #1
89danboy 89danboy is offline
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89danboy 89danboy is offline
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Default Bad flare

Haven't been able to get out of bed or the couch for a few weeks,I'm hoping my body snaps out of it.the pain the swelling the body heat,cold sweats total body fatigue.on top of that I have a tooth ache that's been killing me.its starting to go away I've been on penicillin for 4 days.nobody gets what we go thru,there like go outside and sit in the sun or take a walk .if my body is in the uprite position everything feels twice as bad when I'm feeling this way .im suppose to schedule my lidocaine infusion in philly my blood work just came in and they left a message to schedule it.i don't won't to be in a hospital bed for 5 days when I'm having a flare up.ive done all the inpatient outpatient infusions with dr schwatzmann ,now the ketamine isn't working anymore so dr Lopez he was one of swartzmanns protégés is doing mine he did a ketamine inf for me but it didn't do anything ,5 day inpatient.have any of you had the lidocaine inpatient and if so what was your results how did you feel .i want to thank all of you for listening and I care about everyone of you.im always here if anyone needs anything thankyou 😍
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catra121 (05-01-2016), zinnia (05-01-2016)

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Old 05-01-2016, 01:07 PM #2
zinnia zinnia is offline
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zinnia zinnia is offline
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I am sorry you are going through so much pain, and to have the pain of a toothache on top of that. I know how hard it is to be confined in bed with constant pain and unable to get comfortable. It is torture. I have not had any experience with infusions. I hope that others who have that experience will share it with you soon. It has been rather quiet in here lately.

There are times when I so want to be outside, on our porch, to catch a few rays of sunshine, and can not find any place to put my RSD foot, where it is comfortable, this I am working on now, finding a place to have that foot up, as it is so important for me to be outside. You have inspired me to make that a priority for me. I thank you for that.
I hope your tooth feels better soon. I can sure see how that would make the RSD pain worse.

I know that there are others in here who have had a good experience, very kind nurses who understand how to provide the comfort, while someone with RSD is under their care. I hope that you have a good experience while in the hospitol and the best of care. Thank you for sharing with us. There are others in here who care and understand.

peace
zinnia
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Old 05-01-2016, 01:26 PM #3
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catra121 catra121 is offline
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I'm sorry that things are rough for you right now and I hope that this flare up passes soon.
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