Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-15-2016, 08:29 PM #1
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Default Twitching...

Does anyone else get random twitching of their affected limb? Not spasms, just random twitches. I'm getting little ones, big ones, randomly. I wasn't getting very many until this week, now they seem to be more often. So weird to have your body just jumping.
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Old 05-16-2016, 09:15 AM #2
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I do. At my worst I had spasms and constant twitching when the pain levels were at a 10 (this was when I was in a wheelchair). Since I got myself to a better place after PT and baseline pain level od 6-8 most days...I now only get random twitches. When the pain levels get higher then I start to see more twitching again.
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Old 05-16-2016, 06:35 PM #3
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I get the twitching too. It does help to know others also have this. It does happen when my pain level is high when I have overdone it now. There were so many symptoms in the beginning before I started taking Gabapentin.
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Old 05-16-2016, 09:30 PM #4
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I'm getting a lot of twitching this week and its making everything hurt more...
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Old 05-17-2016, 08:49 AM #5
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I'm sorry to hear it's still bad. It is a viscious cycle when the twitching is bad because...as you said...it makes the pain worse which then makes the twitching worse. Have you talked to your doctor? Maybe there is something they can do for you. Otherwise my advise is just to rest and do whatever you need to do to get pain levels down. I pull out all my tricks when I have flare ups that get bad enough to cause twitching: hot bath with Epsom salts, ultrasound heat therapy, heat patches, my flare up playlist on my iPod with earbuds in (don't know why but listening with headphones is better for relief...maybe because it drowns out everything else), TENS unit (if in one particulr spot) or Quell treatment (when pain is more generalized), and rest.

I hope you get some relief soon so that this stops. Definitely don't be afraid to see a doctor about it and to check it out to make sure nothing else is going on. I had a very thorough work up when this started before they attributed it to the RSD.
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Old 05-17-2016, 12:44 PM #6
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Sorry to hear you are hurting worse Becca. I agree with Catra pull out all of your bag of tricks, all we can do is keep trying things that will help, if only a little, or for a little while. Something else to focus on, away from the pain helps me, even for a little while. Keep in contact with your doctor. I hope you feel better.
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Old 05-19-2016, 12:55 PM #7
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I am sorry your pain has increased. I also have twitching in my arms and hands. My thumbs will twitch and tremor so much I have to put my hands in a fist or sit on my hands.

Last night my legs started jumping and twitching. This is new for me.

I hope you all have less pain. One day at a time. Sometimes one hour at a time. I keep telling myself this too will pass.

God bless,
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Old 05-19-2016, 06:09 PM #8
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My foot and lower leg is still twitching around a lot. I don't like it, but I am NOT ready to add another medication to the pile! I'm working on relaxing my muscles when this starts up.
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Old 05-19-2016, 08:57 PM #9
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Becca, that sounds like a good idea, relaxing your muscles. Warm bath. Heat helps me, a heating pad, have to be careful it does not get too hot. I have an electric mattras pad on the bed, it is comforting to my RSD foot and my legs that ache. I hope you feel better.

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