Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-20-2016, 06:57 PM #1
zinnia zinnia is offline
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Default tough day

This has been a tough day for me. Back hurts so much of the time anyway, yesterday I sat in the lawn chair and bent over to do a little weeding. I can not know what I can do unless I try? Then came in the house and was cooking, mind was worn out, I should have cut the chicken breast into strips so I would not have to sit and cook it so long.

Hubby and I were kinda joking about how broken down our health is, and that I am doing the best I can, to do what needs to be done, cooking and cleaning etc. I started to give him a gentle hug and smile, he gave me a big bear hug back, the pain was so bad I thought I might pass out. So sad. He knows better, he did not even think, he is so strong, and that is the kind of hugs he gives everyone, he did feel bad, did not mean to hurt me. My back is so fragile, and getting worse.

Today I am really hurting, from the weeding and the hug. I was so weak this morning. I knew I needed to just stay in bed. Without thinking I told him I would need him to help me today. In reality what I needed to do was take everything I would need into the bedroom for the morning and camp out. Of course I know how to do this. That is what I did. It actually felt good to be able to do what I needed for me.

I told him I did not need his help, (as I could see he was drinking and I knew it would not be good help.) He could see the pain I was in. He came in the bedroom continually trying to help me. grrrrrrrrr I just wanted to rest.

Be careful what you wish for cause you just might get it. hahaha

I must learn to think before I speak. Look. Accept. Do whatever I can to take care of me.

Thanks for listening, it is helping me process what happened. It is helping me see what I can change, what I can do different next time. This is just one day, one bump in the road. Letting it gooooooo now. :-) now back to bed.

peace
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BioBased (05-21-2016), catra121 (05-20-2016), RSD ME (05-21-2016), St George 2013 (05-21-2016), visioniosiv (05-23-2016)

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Old 05-20-2016, 09:04 PM #2
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I do the same thing...try stuff just to see what I can handle and how much. Even with my shoulder...I have to test it from time to time to see if it is improving right? Never anything big or earth shattering just things like lift the baby, wash her bottles, etc. I figure if at any point those DON'T hurt then I can go a little bigger...but so far no luck. Still...I have to keep trying. It's the only way to learn your limits really.

Glad you are taking it easy today...take as much time as you need to take care of you. Very gentle cyber hugs.
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Old 05-21-2016, 10:58 AM #3
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hi zinnia and catra. i had rsd for over five years now and have learned that it takes some trial and error and time to learn what my limits are with rsd. and even with that it is not always easy to tell how much i can do because rsd is so unpredictable by causing me different levels of pain every day. some days when the pain is lower then others i might try to do a little more but then pay for it for days afterwards and stay in bed to try to get the pain level to lower a little and gain some of my strength back. i have learned to take it a day at a time and to not over do on lower pain days so that i don't pay for it on the days the follow when the pain may get worse. it sounds like you are both learning to listen to your bodies and your instincts and get the much needed bed rest you need to feel a little better and i hope you both start to feel better soon. take good care of yourselves. sending soft hugs both your ways.
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Old 05-21-2016, 12:29 PM #4
zinnia zinnia is offline
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Thank you Catra and RSD for your encouraging words. I am feeling a little better today, was able to walk around the yard a little, and picked 5 strawberries, the first of the season. It is a beautiful sunny day here, the cats were happy to have me sitting on the porch petting them. Yesterday one of them kept looking through the door wanting me to come out and pet her.

There will be good days and bad days I can sure see that. May we all see a little joy in our journey today. prrrrrrring cats are a joy to me.

RSD I really like seeing the serenity prayer.
:-)
peace
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