Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-25-2016, 03:18 PM #1
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Default Frustrated beyond belief...

I have been through the ringer with work comp before and normally I don't let their games get to me...I just be patient and calm and let everything get worked out. Today I have been in tears since I got my mail today informing me about an IME they scheduled. I assumed one would be coming at some point and the IME itself is not the problem. The problem is they scheduled it for the EXACT same date and same time as my appointment with MY pain management doctor. That means I have to reschedule MY appointment and guess what the first appointment time is? JULY 13th! I am going to run out of meds by then (which hopefully they will refill) and the worst is that it is going to delay my treatment another 5 weeks! Ugh! I know they did this on purpose...but the damage is done and I apparently have another month and a half of sitting and waiting with no relief and no results from the MRI or knowing what the next step is. I just sort of want to curl up in a corner and be dead to the world for a while...it's just SO not right.
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Old 05-25-2016, 06:19 PM #2
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i'm so sorry that you are having all these things happening to you Catra. but i'm sure things will work out with you work comp, pm appt and mri results. i know its hard but try to take a deep breath and clear your mind. tackle one thing at a time, one day at a time. you have to make sure you don't use all of your energy up on just one thing. that will cause you to be more tired, stressed and increase your rsd pain level. if i were you i would talk to my pm dr asap and tell them the situation with your work comp appt and see if they can reschedule you in sooner since you will run out of meds otherwise. i don't think they would want you to just stop taking your meds altogether because of the side effects and withdrawl symptoms. i am not a dr, but because this is out of your control, i would think they would understand. as for the mri, i'm sure you will get the results soon. i have had to wait up to a week for some of my mris so try to hold on and know you should probably be getting them soon. i hope you start to feel better soon and that everything goes smoothly with work comp. soft hugs
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Old 05-25-2016, 09:37 PM #3
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Thanks. I'm a little calmer now...what is done is done...I'm just super frustrated by the delay. Unfortunately...they cannot get me in any earlier at the doctor. I did ask to be called if anything opens up though...but it's not likely. They will probably do the refill on the meds...it's Lyrica so not something that I think would be an issue. It IS something I don't want to stop taking abruptly though. As for the MRI results...I could probably GET the results earlier...but without being at the doctor those results don't do me much good so I will just wait until July 13th to get them there. This is just such a set back in terms of time...I want to get moving already with treatment for crying out loud and this just set me back another month and a half. If I end up needing surgery there is no way I will be back at work before Christmas and that thought just kills me inside. Sigh...I know it is out of my control and there's no point in getting worked up about it...but this whole process has just been so hard for me now that I have a child to take care of. The longer this drags on, the harder time I am having dealing with it on an emotional level.
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Old 05-26-2016, 05:23 PM #4
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Catra I am so sorry you are having all these problems. I can sure understand your disappointment and frustration. I would think they would refill your Lyrica, I would just keep asking until they do. As hard as it is at times, I know it is important to be calm in order to keep the pain level down. I hope you feel better soon. I am glad that you shared with us.
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Old 05-26-2016, 06:36 PM #5
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Thanks. I had a good cry today in bed and am feeling better now. Sometimes I just need to let it all out and get stuff off my chest. It's the unknown that really gets to me. If the dr said there's nothing we can do and you just need to live with this pain then I would be able to grieve and cope and move on. But to know that there's a chance I could get better but instead am being delayed and made to suffer longer.
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