Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-01-2016, 02:59 PM #1
newyorkmets newyorkmets is offline
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Default DRG stimulation?

Recently, my pain doctor talked to one of his colleagues about me and his collegeaue is one of the only few in the Northeast to offer dorsal root ganglion (DRG) stimulation. He said that he thinks I would be a good candidate for a trial and that this new DRG technique is specifically for CRPS patients and has had great success. Has anyone heard about this new treatment and have thoughts about it? I already have a traditional spinal cord stimulator and just have it implanted only a couple months ago. However, I think there is significant promise with this as in the research many have reported more than 50% pain relief compared to my 25. There is no paresthia or buzzing and I'm supposed to feel no stimulation, just pain relief. Also, I thought this method to be a few years away so it's exciting to see it available to some with St Jude's being just recently approved. Thanks!
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Old 06-01-2016, 09:29 PM #2
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I read an article about it and it sounds promising...but I haven't heard any first person reports on it (not surprising since it is so new). Because it's so knew I think it's one of those where you will have to go with your gut and what you think based on the studies and what your dr says. I personally would want to wait until I hear from more people on it...but then again I've had really bad luck with spread after even minimally invasive procedures. Like anything else...I always say you have to weigh the risks and the possible benefits and make the best decision for YOU based on the information you have.
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Old 06-07-2016, 09:36 PM #3
RSD ME RSD ME is offline
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hi ny. i have never heard of this new treatment but hope that if you try it that it will become something that will be able to help manage your rsd pain better. i am not a dr but if i were you i would just make sure to get all the facts, weigh the pros and cons and get several opinions from drs before deciding on whether to try it. i personally am terrified of anything invasive like the scs and have that put that as my last resort (maybe). the meds i am prescribed along with mild stretching exercises seem to be helping me manage my pain a little better for now. thanks for the info on this new procedure. hope you feel better soon whatever you decide to do. take care.
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