Hi Mom2Pets,

Welcome to NeuroTalk!

I am sorry you have had to wait 17 years for an accurate diagnosis.
Now that you are diagnosed, I hope you will find lots of cooperation with various treatment options.

I have not yet tried LDN, however I will be requesting it in appointments this week and next week.

Lots of great resources/advice offered in this thread.

In addition to the sources mentioned here, in the video mentioned by Littlepaw in another post, Dr. Sean Mackey of Stanford talks about LDN:
Love and other treatments for CRPS - video from Stanford

Just for what it's worth: I am getting so much more understanding and help from my private practice rheumatologist than I have squeezed out of the neurology department of a teaching hospital in many years. As I understand this, rheumatologists are well-trained, well-positioned to diagnose and to treat CRPS. (They diagnose and treat some of the other conditions many researchers feel are similar in nature: fibromyalgia, CFS/ME/SEID, multiple chemical sensitivities, etc.)

I hope you find the cooperation/assistance you are looking for, pronto.

Again, welcome!

Love All Around!
DejaVu