NeuroTalk Support Groups - Unofficially dx with TOS and RSD

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Unofficially dx with TOS and RSD (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/23719-unofficially-dx-tos-rsd.html)

Quote:

Originally Posted by wildberry2277 (Post 123951)

Here something i posted a few days back in the TOS forum... It was my first real sign of RSD.... My doctor side i already had it... No i havent seen a PM doctor because i cant get anyone to listen to me... My doc said RSD was no big deall... FINDING OUT IT IS!:mad:

I need some help with this question.... I was playing cards which really upset my symptoms.... Durning the game all of a sudden a got a really burning pain inside my elbow and then up to my shoulder neck and right side of my face... and finally in to my finger... The burning turned my arm red.... and it was a terrible pain.... Has anybody every had tempture changes in their arms.... The pain is the worst today then it has been in awhile...

I am kind of freaked out... .dont really know what it could be... Visbly having it beat red compared to my other side....

Please if anyone has any info let me know i dont see a TOS doctor for 3 weeks same with a neuroligist...

Wondering... when it was red was it hot to the touch too?? :confused:

Any doctor that says RSD is no big deal has lost their mind!! It is not some simple thing... it's really a difficult disease to treat. I hope you can find a new better doctor!

Huge pain free hugs xxxxxxxxxxxxx

Hi Jacquelina!
I have to conquer with what Dawn said;"That any Dr. who tells you that RSD is "No BIG deal" has no business what-so ever treating you!"! I had a really awful(Doogie Houser, he was a baby) Remember him, you other guys? :D LOL anyway, he was a "jerk" told me that no narcotic meds. would help me with this RSD! Now, my surgeon who did the CTS refered me to a hand/ wrist specialist. OMG I love the guy!! so down to earth!!:cool: ok.. he refered me to him, as HIS pain Dr. (he refers RSD folks too) ok.. I go there to see another PMD thinking..another jerk!! No way!! this dude was so cute by the way ;) and he was the one who took careful notes, checked me out throughly!(My old pmd just grabbed my hand to see if it was cold) said oh, my gosh.. and threw some prescription neourontin at me(they help) wanted to put me on a different anti depressent pill.. which I refused!! Now.. IMHO I would for sure get a new pain managment Dr. this was my send one and I just think he is very, very accurate and good. hang in there, post and let us all know how go's Jacquelina!! :hug: :hug: to you! Love, Desi