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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-03-2016, 07:44 PM | #1 | |||
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I'm sorry to hear that you are going through this. I've had many of these issues in the past...though not all of them. One tip I learned from another on this board that helped me...particularly with increased pain from certain noises and stress...is to use earbuds and listen to soothing music on my iPod. The ear buds were key to this for some reason as I tried just listening on the speaker and it didn't help. I have what I call my flare up playlist...it's instrumental songs...many from some of my favorite movies and tv shows. I can put my earbuds in, close my eyes, and it really does help. I don't know if you've tried this before but I have found it helpful where nothing else did. Obviously doesn't address all the issues either...but I figure anything is better than nothing. I can post my playlist if you're interested in the types of songs I use on my flare up playlist.
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07-03-2016, 08:22 PM | #2 | ||
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"Thanks for this!" says: | catra121 (07-04-2016) |
07-09-2016, 08:51 AM | #3 | |||
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I was diagnosed 1998, almost 3 years after onset. I was in pain so much I could not get out of bed, and the RSD/CRPS spread from both knees all through my legs (tippy toes to hips). Both legs. It wasn't until that time that I got put on mild/moderate pain medication (Tramadol). First the drops, then the long release ones. But that only took the sharpness off of the pain.
It took until 2004 until I got adequate pain relief. So in that time, I had a lot of issues with sounds, and not being able to get accustomed to things around me, having a really short fuse, things like that, being angry a lot. Then 4 years later it spread to both arms/hands. I got and am still getting treatment for that (but it does not affect my legs anymore). I have a pretty severe disability from that. I think the key sometimes also is adequate pain relief. Anxiety, not being able to stand sounds, I recognize that, but I don't have that so much now anymore, now that my pain is controlled.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | scubaforsythe (08-23-2016) |
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