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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Newly Joined
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Hi all,
Apologies for the super blank profile. I've been browsing for about a year, only just registered and of course, the pain is so crippling, I just don't have it in me to fill out a full profile at the moment. Curious to hear from those who've had IVIG for CRPS/RSD. I am in the UK, pretty sure I just missed Dr Goebel's clinical trial for it here, but have read threads in the past here of people having received this treatment in the US. I see the Ainsworth Institute in NYC offer IVIC infusions. Any of you who've had any success with it care to share experiences/where they had it done? For the intro I never made: Female, 29, United Kingdom. Former ballet dancer, CRPS in both feet and legs Definitely out of stage I,probably not stage III, so just hovering somewhere in cold phase with recurrent flare-ups, barely able to walk, allodynia, and the usual crushing, aching nightmare that never freaking ends. ![]() Thanks. |
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Thread | Forum | |||
To IVIG or not to IVIG - that is the question | Myasthenia Gravis | |||
Have you tried IVIG for CRPS? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Ivig | Myasthenia Gravis | |||
IVIG et crps | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
my first ivig | Myasthenia Gravis |