Hi I am in the UK too and I just missed out on Dr Goebel's IVIG trial (I had to go all the way up to Liverpool from Kent to get my diagnosis because I am so young).

Watch out because the results of the trial are coming out in the next month or so if not already, I think he said it would be a 1 in 4 success rate or something like that. If its positive they may introduce it as a treatment in more locations across the country.

Have you spoken to your local pain consultant? (if you have one that is), mine discussed with me the possibility to administering it at our own hospital as Dr Goebel gave him the go ahead to do that. I have just had a stellate ganglion block for the crps in my arm so we are going to wait to see if that works first xx