Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-10-2016, 03:40 PM #1
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Default Salmon calcitonin

Who's ever heard of this? They are injections of salmon calcitonin which are used to "combat" CRPS.

It is by far the most commonly used treatment for especially early-stage CRPS in Belgium.

I'm not sure it is even sold in pharmacies in other countries around the world.

Just wanted to start a thread on it, possibly introduce you guys to this "method" of treating CRPS.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-10-2016, 05:35 PM #2
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Lightbulb

you might want to read this:

Oops! FDA Admits Huge Osteoporosis Drug Mistake

I couldn't find salmon calcitonin in FDA orange book...
I believe both the RX brand name Miacalcin and the salmon calcitonin are no longer available in the US and Canada.
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Old 07-11-2016, 05:24 AM #3
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Default

Quote:
Originally Posted by mrsD View Post
you might want to read this:

Oops! FDA Admits Huge Osteoporosis Drug Mistake

I couldn't find salmon calcitonin in FDA orange book...
I believe both the RX brand name Miacalcin and the salmon calcitonin are no longer available in the US and Canada.
Yes, here in BE the nasal spray was taken off the market because of a higher "risk" of cancer occurring. The injections are still widely approved and are okay to use. Because the administration is different.

The brand you can get over here is called "Miacalcic".

I have to say it works well on my arms/hands. I was getting a cold right hand, and with extended use, the cold dropped from shoulder, to an elbow, then from my elbow to my wrist and then the fingers, and now my arms are basically doing fine, but not stable unfortunately.

And it no longer does anything (in the sense of mobility) for my legs. It does keep them a higher temperature (less cold). So that helps hugely.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-11-2016, 07:01 AM #4
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CRPSbe,

You might want to investigate the Wim Hof breathing technique. He is known as the IceMan, because he is able to withstand icy temperatures. Originally, it was believed that he was unique, but this is not the case, as he has trained others to do what he can.

I can do some of the breathing techniques he teaches, but I am unable to bear the cold water part of his technique. I was able to lower the temperature of my showers and have almost stopped shivering when I get too cold. Although the past two cooler days have been a challenge that required a heating pad on high to warm me up.

I suspect that what WH does is similar to yogi breathing and that learning breath control could benefit CRPSers, due to a connection to the Vagus Nerve and its connection to the autonomous control of our bodies. I been avoiding doing anything drastic until I find out the results of the brain surgery I had early this year, but once it is confirmed that it is safe for me I am going to try the full WH method or take a yogic breathing class.
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Old 07-11-2016, 08:09 AM #5
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Quote:
Originally Posted by BioBased View Post
CRPSbe,

You might want to investigate the Wim Hof breathing technique. He is known as the IceMan, because he is able to withstand icy temperatures. Originally, it was believed that he was unique, but this is not the case, as he has trained others to do what he can.

I can do some of the breathing techniques he teaches, but I am unable to bear the cold water part of his technique. I was able to lower the temperature of my showers and have almost stopped shivering when I get too cold. Although the past two cooler days have been a challenge that required a heating pad on high to warm me up.

I suspect that what WH does is similar to yogi breathing and that learning breath control could benefit CRPSers, due to a connection to the Vagus Nerve and its connection to the autonomous control of our bodies. I been avoiding doing anything drastic until I find out the results of the brain surgery I had early this year, but once it is confirmed that it is safe for me I am going to try the full WH method or take a yogic breathing class.
Breathing techniques don't work for my CRPS. I'm sorry, I'm just not a big believer of things like that. Not my cup of tea. I don't see what this has to do with calcitonin?
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 07-11-2016, 02:40 PM #6
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Nothing! But you did mention that C helped you warm up and I thought since breathing techniques can help with cold tolerance in a similar way, you might be interested in this holistic alternative. Sorry that it isn't your cup of tea.

Last edited by BioBased; 07-11-2016 at 11:44 PM.
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