Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-20-2016, 07:35 AM #1
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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You can read in my signature it spread to my arms/hands in 2008. Well, I got treatment for that (salmon calcitonin). First the vice feeling and ice cold was up to my shoulder (esp. my right arm). Then after months of the injections (and not quitting after 3 months), the cold was up to my elbow.

Then it took about a year for the cold to get out of my arm completely.

It is not stable, however. And when I type, I feel it, believe me I feel it! Esp. the stiffness in the joints (up to the shoulder) and movement of the fingers.

But it got better, thank GOD!

Unfortunately, it doesn't seem to do a thing for the mobility in my legs, not that I notice it making a difference. I still get flare-ups too (just got over one in the last couple of weeks). It keeps my temperature more regulated, which is an altogether *great* thing.

Anyway, that's my experience.

In CRPS it's important to treat the symptoms, and for bone density and bone health, sorry, but you need a rheumatologist referral.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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