Numb,

Dudley's Low Dose Naltrexone Sites

The protocol is start low and go slow.

Side Effects and Dosing of LDN - Dudley's Low Dose Naltrexone Sites

You can take your 50mg pill, put it in 50mgs of distilled water, when it melts shake the container. Tilt the jar to allow the sediment to collect on the side bottom of the jar. Don't shake again. I transfer the clear LDN I just made this way into a clean container, pouring it out carefully so as not to disturb the sediment.
How to Make LDN at Home | River News Desk

I use an eye dropper measure to siphon up the amount of LDN I am taking. By mixing it myself I can more easily change the dose. I take mine in a swig of pineapple juice which cuts the bitterness.

How to LOW DOSE Naltrexone(C) (LDN) - YouTube

I am going to start LDN again on Monday. I will start at 2mgs and then build up to 4.5mgs. I also skip a day, other people I know skip 2 days a week.

Facebook has an LDN site called Got Endorphins, which has loads of information.

WOW> I about had a heart attack when I read what your doc wrote. By definition that isn't LOW dose naltrexone.
I don't know where you are and what kind of doctor you are seeing. It might be worth a second opinion. LDN (as others mentioned) must be compounded. It has been used successfully by MS patients (my husband did for years) and now is being used in CRPS though I believe it is still considered trial or experimental so to speak (I'm not using the right words).
Anyway, LDN is very safe (up to 4/4.5 mgs) with little to no side effects which is why many doctors are willing to prescribe it. However you cannot take with any opioid pain relievers.

Numb,

Just want to add that the standard dose is 4.5 mgs, with outlier variations of 2.5-12, for CRPS.

I started taking LDN in June 2015 with great results. Because it helped so much I was able to stop taking neurontin in the winter and the best part is I did not need to take other meds. I think LDN is a miracle. But what helped me to regain my ability to walk was the addition of Aqua PT. I believe you need both LDN and Aqua therapy to overcome RSD.

Last year at this time I spent most of my day huddled under an electric blanket. Walking to the car on crutches exhausted me. Regular PT helped me, but was torture. In the past I had floppy ligaments, foot drop, a twisted foot, excessive color changes, allodynia, I slept with a stool to keep the blanket weight off my feet. I could not stand in the shower. Just about anything could knock me over. My pain was off the charts. I could never get warm. I could not drive, shop, read, think.

I am not 100% better, my CRPS is now called mild, so it hasn't gone, but it's better. I still cannot hop, skip, jump or run on land, but I can in the water. I still can fall over if I step on a crumb, but my balance in general is much better, I am able to sleep most nights without the stool, I can stand in the shower, not long, but for a few minutes and I can get in and out of the tub without help. I can walk around the supermarket with a grocery cart. I can carry small bags into the house one at a time and drive short distances. I can wear shoes again, mostly okabashis, not fashionable, but better than no shoes before. I can open heavy doors while carrying my purse and cane.

Thanks for your reply! Your feedback was so encouraging. I have been feeling down at times when I feel I am running out of options to fight my RSD pain. Glad to hear that LDN and aqua therapy can reduce your pain from severe to mild level. May I ask you some questions. Did you try the blocks before you try the LDN and aqua therapy? When you said Aqua therapy? Do you mean water (pool)therapy? Warm water with exercises. Am I correct?
I would really appreciate your feedback.

I am so glad I did not try what my pain doc prescription yet because it did not sound right to me. After reading the links provided by others, I now have a better understanding of this drug and ready to start it slow.
Thanks.

Before you do this, is there a reason why you can't give your doctor print outs of the correct info so he can prescribe the correct medication compounded for you? This will prevent him from making the same mistake again for other patients too.

Water therapy is very good for CRPS. I find water at about 95 degrees Fahrenheit to be very comfortable for me. Then I can move my CRPS foot in it.

There is a great deal more PT that can and should be done, but you would need someone trained in it to work with you.

My impression was he does not like to discuss medications on the phone. Perhaps I can try to call him. I will be on vacation starting this Thursday, out of state, so compound may not work for my situation right now.

HI,
Great info! I have some questions about mixing it. Do I have to keep the mixture in fridge and how long I can keep it in there? Is my interpretation correct? 50 ml distill water mix with one 50 mg tablet. 1 ml mixture=1 mg tab.
At first, it seems so difficult to mix it myself. But after seeing the video, it is so much easier. Thanks. I think i will feel confident to give it a try.
Numb.

I am taking buprenorfin since 2004 (pain patch + sublingual pills for breakthrough pain). I wonder how this medication compares to the low-dose naltrexone.

Numb,

I was not given blocks, because the WC Doctor said they work best on early CRPS. I was not diagnosed until almost a year had passed, even though I had a classic presentation of the disease.

The LDN must be refrigerated and it is good for more than a month. Do not be wary of DIY LDN. It took me a month of trepidation before I mixed it and used it. When I look back I cannot believe I delayed. If you can measure you can do this.That video is what motivated me.

BTW, you do not have to shake the mixture everytime. Once it is mixed the LDN stays in suspension, the sediment is filler, which I prefer not to have in my LDN. Also I use a metric measuring cup to measure the water, much easier and faster than siphoning it out of that big bulky jug.

The therapy I have is 2x a week in a warm, salt water swimming pool. I am currently working out with hand weights which have made my workouts harder, but will hopefully help me gain strength and stamina. I still cannot tolerate the AC in the changing room, so I change in the sauna.

When I first went to PT and had to change clothing, I literally fell over with pain and exhaustion. Just carrying in a bag with a towel was too much. I couldn't open any of the doors either. I am much better, improving incrementally. If WC refuses to pay for more of this therapy I will fight them and I will join this facility at 100 a month, because I believe the water therapy is key to regaining full mobility and strength.