Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-25-2019, 01:42 PM #11
CRPSinSC CRPSinSC is offline
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Join Date: Jan 2019
Location: SC
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CRPSinSC CRPSinSC is offline
Junior Member
 
Join Date: Jan 2019
Location: SC
Posts: 44
5 yr Member
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This is an old thread, but with CRPS/RSD, I wanted to say that I just recently did look into what Mayo was doing for RSD and it's not anything special, so as others had said back in 2016, Mayo is not the place to go for RSD/CRPS. They have an outpatient pain clinic (helps you learn to live with pain) that they suggested for me (so I would have had to move to Fla. for 3 weeks, and get back and forth to this place, to learn how to live with RSD pain). They do not do Ketamine (told me it didn't have a high enough rate of effectiveness, which is fine, as my doctors here also tell me the same...Ketamine is 10-12k per treatment period, and only gets about 50% of patients the relief they are seeking). Mayo does do the pain pump/stimulator, but I think most of us can get this in our own states of origin.
So, I decided against trying Mayo earlier this year, because I can get stimulator and help with coping (fwiw) here in my own state.
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