First...I am sorry to hear all that you are going through. I agree that your FIRST priority needs to be to address the life threatening issues. I've always said I can get through anything with RSD because I know (despite how it feels) that it is not killing me and that knowledge often gives me the strength to push through when I need to. So I really strongly believe that you should go where they have the best chance at success to treat your life threatening issues.

That out of the way...Mayo is not a good place to be treated for RSD of any kind let alone full body unless something has changed in the past few years since I looked into it. They do a lot of wonderful work there...but I've heard nothing but disappointing stories from people who went there seeking treatment or even just diagnosis for their RSD.

Hopefully...one of the previously mentioned places can take care of all your health concerns. Take care and keep us posted.

Great point that the first priority needs to be life threatening issues. In a perfect world we would expect everything to be right there for us. Unfortunately, sometimes we need to prioritize and life threatening situations need to be right at the top.

Shay

This is an old thread, but with CRPS/RSD, I wanted to say that I just recently did look into what Mayo was doing for RSD and it's not anything special, so as others had said back in 2016, Mayo is not the place to go for RSD/CRPS. They have an outpatient pain clinic (helps you learn to live with pain) that they suggested for me (so I would have had to move to Fla. for 3 weeks, and get back and forth to this place, to learn how to live with RSD pain). They do not do Ketamine (told me it didn't have a high enough rate of effectiveness, which is fine, as my doctors here also tell me the same...Ketamine is 10-12k per treatment period, and only gets about 50% of patients the relief they are seeking). Mayo does do the pain pump/stimulator, but I think most of us can get this in our own states of origin.
So, I decided against trying Mayo earlier this year, because I can get stimulator and help with coping (fwiw) here in my own state.