Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-12-2016, 09:23 PM #1
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Becca71 Becca71 is offline
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Location: CA
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Becca71 Becca71 is offline
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Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default I got bad news today

When I fell a few weeks ago, we thought I re-broke my foot, but it turns out that the first metatarsal fracture never healed. Yep. Come to think of it there never was another imaging done to check.

Which means, in order to really be able to get 100% of whatever my functioning is going to be able to be with CRPS I'm going to need surgery. Except surgery with CRPS is highly likely to cause a flare. But not having surgery is highly likely to leave that area in my foot in more pain and less stable. Catch 22.

So his suggestion is to keep doing the PT and desensitiztion I was doing before until I reach a point where I'm not improving anymore. Then do the surgery. Knowing that I WILL have pain and being prepared to manage it. And then after that, with PT, I should be able to have better functioning than I did before.

He says he needs to go in and scrape off the "bad bone" and then put in a pin.

AND it validates that the pain I continued to feel there that I was told is healed and is just my faulty nerves isn't. It is real pain from a never healed injury.
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