NeuroTalk Support Groups - Can you all think/ pray for IHH?

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Can you all think/ pray for IHH? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/24043-pray-ihh.html)

AWW!! Thanks a lot, my friends! Since I am doing, quite frankly, horrible, I am just going to post here what I managed to get typed for my blog last night:

Quote:

I can't explain much because I can barely sit up without passing out, but things are not going well... the passing out (because my blood pressure is really low), RSD, migraines, etc are really really bad, and I can't do much but lay on my bed as flat as possible.

That's why I haven't been around- I can use the computer for 2 minutes and then I feel really really faint. I am thinking that the baclofen is causing my blood pressure to plummet more & more- so, I might have to stop that (good for my blood pressure, but bad news for my tremors!!)... pray that things will work out. Thanks!!

SO, thanks my dear friends! I appreciate the prayers, TLC, love and concern. I would appreciate prayers for the upcoming days... trying to get my b/p sorted out, and I am so so faint right now. My blood pressure was 67/49 earlier!! And, my pulse wants to hang around 120-140! So, bad news.

Am also dealing with nausea, vomiting too! :(

Thanks again! Love you all! :grouphug: xxxxxxxxx

IHH,

Hope you get better and keep laying down!! I have migraines too but not that bad.. you will be in my prayers and let us konw how you are doing as soon as you are up and around!!

Hugs!
Amber

Hey kiddo :)

I hope you can get this crud sorted out soon - prayers and hugs --
4 U:grouphug:

Awwwwwwww.. Ness! Good hearing from you honey! Yes, prayers. prayers and more prayers being said for you! You were doing so good there and wham.. another darn blow on your BP, fainting, pulse. I love ya lady!! Love & Prayers Ness!! Love, Desi

Quote:

Originally Posted by RSD_Angel (Post 126543)

IHH,

Hope you get better and keep laying down!! I have migraines too but not that bad.. you will be in my prayers and let us konw how you are doing as soon as you are up and around!!

Hugs!
Amber

Amber, Have you found anything that works well for the migraines??

TIA! And thanks for the hugs! :hug: :hug:

Vanessa,

I am very sorry that you are having a rough time, but please know that you are in my thoughts and prayers. May you feel the effects of prayer sent up for you by the many caring people here, and feel much better soon.

:cool: EJ

Hi InHisHands,
I'm so sorry to hear your going through such a rough time. I will keep you in my prayers and hopefully you will get some relief soon. Take Care

Laraine :hug:

She is going to get her butt into gear and do better though. She has already been ordered too as she is supposed to be coming sky diving with me.

(I know I'm mean to her, but she does admit it works eventually and she does sometimes forgive me)

Love ya babes...

xxxxxxxxxxxxxxxxxxxxxxxxxxx you know why I'm bullying you :P

Hugs for you, Vanessa:hug: :hug: :hug:

Quote:

Originally Posted by frogga (Post 127283)

Well, you'll have to give me recovery time... :Speechless:

Last night I tumbled and I messed up my knee (huge lump/ bruise), and yesterday morning I had fell off my bed (upside down!) and tonight I got tripped up and fell on my left leg (which is my bad leg)...

Since late last night my left leg has been locked semi bent and won't move. I really messed it up this time!! :mad: So, I am in mega pain and I feel horrid. :Sigh: I am biting my teeth through it and trying to get going again Frogs!

You'd be proud of me- I went out in the living room and ate dinner with my family!! Some progress... :wink:

AND, FYI: I am scared to death of heights... I can't believe I promised to go!! :Ponder::Ponder: :yikes:

I must be feeling crazy!!:Crazy 2: (I know you are joking! So am I! ;))

SO, COULD USE LOTS OF PRAYERS AND HUGS!! Thanks everyone. :grouphug: